I have come across an article in a magazine and the woman described an illness that she had suffered from for a long time.
I have had all the symptoms for years myself.
I every so often also have episodes that I call- my funny turn.
Which I get a tingling (déjà vue) usually on the right hand back of my scalp which goes along my neck, then I basically seize up.
My face will go numb, I can't speak but can hear all that goes on around me.
My eyes do their own thing and I am basically paralysed.i can't move my legs or arms or hands.my hands actually clean house up and the paramedics couldn't open them neither.
This can last for up to 20 minutes.
Then the paralysed state eases and now and again it will come back. Which I think are mini strokes!!
I have tinnitus and a nystagmus also I suffer from an svt.
But my funny turns even my neurologist couldn't tell me what it was??
I have all the symptoms for the Hughes syndrome?
Help, anything would help to see what it could be?