Hi there I was diagnosed with APS three years ago by Professor Khamashta. I was put on daily Fragmin injections which really helped with my symptoms ! I went to my appointment last week and seen by a Dr Sangle who I haven't seen before because Professor Khamashta is on a years leave. Dr Sangle basically told me I don't have APS as I only had one positive lupus anti coagulant,one positive anticardiolipin test and a couple borderline. He basically laughed off professor Khamashtas diagnosis and told me I no longer need Fragmin injections or any other blood thinning therapy.He failed to take into consideration the two positive anticardiolipin ,one lupus anti coagulant tests and other related clotting blood tests I had done at Kings college hospital. Because I don't test positive everytime he is saying I don't have APS,whatever happened to Professor Hughes and Professor Khamashtas theory that some patients have irregular blood work and some are completely Seronegative ! I am left feeling really scared and wondering if anyone else has had the same experience ? Thank you x
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