I had a superior mesenteric vein thrombosis almost a year ago. The hematologist that I have been seeing tested me for lupus anticoagulant and I am positive for it. My target INR is between 2-3 and I have been in range for the last month.
My hematologist referred me to a gastro dr due to me always having bouts of diarrhea that started in my early 20's and I still suffer from. If I am not having diarrhea, it is normal for me to have atleast 6 BM per day. The gastro doctor did blood work for Celiac, Crohns, IBS and all of the tests have come back negative. I also had a colonoscopy which showed ulcers in my lower ileum and a few polyps(benign). My hematologist thought that maybe the location of my clot and my stomach problems may be connected, however the gastro dr does not agree.
I have also been having tingling(pins and needles) in my hands and feet. It seems to happen more so at night when I am in bed reading.
Also does anyone seem to have "phantom pains/tinges" from the location of the clot?
I guess I am just looking for some insight from anyone that may have had a clot in the same area. I sometimes have a lot of anxiety about this clot and if I will get another one. Should I be seeing any other specialists?
If you made it this far, thank you for reading.