My medical history-
SLE, APS, Sjogrens, Angina, Vasculitis in legs x4 times, Fibromyalgia, Latent TB......
Like a lot of us I feel "on my own" and would really be happy to hear from anyone who has any sound advice for me.
Have had chest pain for a few months now, right across my chest and feeling heavy pressure in centre of chest, also nasty pain in heart area.
Just feels like my heart is going to burst at times.
Seen at Rhumalology clinic, and informed Consultant re pain which was also in left arm at time. and was told "go to A/E if you think you are having a Thrombosis."
Gradually got very worrying over the next two weeks so presented at A/E.
told all relevent blood tests for heart involvment were negative and the Doctor said he thought it was inflammation and to take painkillers
The leg cramps have only started in the last two months, and the numbness I have from the waist down has been with me for at least fifteen years (Wear & Tear) I am told. my feet and toes are quite numb
Being seen by different Doctors in "the Medical Team" at the rhumatology clinic doesn't help matters and trying to get over my fear of "new" medications does not get across.
In the past medications have caused me to suffer some awful side affects, the worst resulting in seizures, which frightened the life out of myself and my family as they were nearly fatal.
I tried Plaquenil many years ago and they did not agree with me so had to come off them.
The new Consultant stated he would like me to go on them again also Aspirin 75mg,
The Plaquenil caused Colitis? and it wasn't very pleasant if fact it was dreadful, so I came off ithe medication.
I am still having problems in that department but by no means as bad, and wonder if it could be the Aspirin adding to these problems?
In the 90s I had an internal bleed and was told never to take anti inflammatories or Aspirin, but the new Consultant said the benifits outway the risks?
When I was diagnosed with Latent TB last year, I was reassured by public health and respiritory clinic that I did not need to take the medication for TB as I am not infectious.
And naturally with past history with medications I am very reluctant to take anything.
Now the Rhumatologist is insisting I take a six month course for TB or he cannot treat me with any other medications, he states other medications could trigger the TB off again.
Sorry this is more like a manuscript then a post, but any advice would be helpful and most appreciated.