From this point onwards, every time I am in hospital either for myself or the children, I am taking the trouble to write a review on NHS Choices. Mostly I am able to write very good glowing reports on the treatment we receive. However whether good or bad, I am weaving into the feedback each time, that I would like the staff on the ward to view and have access to the Hughes Syndrome Charity website which I add in as a link. Each time this is published with the link. Perhaps if we all do this, more staff in the NHS will read up about it, as feedback does go to the area concerned in the hospital for the staff to view. Having just come out of my local hospital with my son, I was able to give a glowing report and write the feedback accordingly. MaryF
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