I am looking for some insight into possibilities for my sick father-in-law. He was previously diagnosed with late-stage MS, and was just admitted into the ER after having a seizure which left his left leg paralyzed.
The doctors are now arguing between possibilities of MS or Brain tumors (cancer) and can't seem to agree. His MRI shows multiple white "lesions" or cloudy areas that don't look like MS or tumors. Also, all testing has come up negative for MS, but his other symptoms most closely matched so they went ahead with the diagnosis and here we are.
I just discovered Hughes Syndrome, and it sounds eerily close to what he's experienced-
periods of uncontrolled jerking or muscle spasms, headaches, memory problems, dizziness and balance issues, falling, tingling and numbness in his limbs.
I'm wondering if it would be worth it to try to find him an experienced rheumatologist, as I'm not sure the doctors here have even heard of APS.
Kind of grasping at straws, but looking for any kind of hope in a desperate situation.
Thanks for reading,