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Hughes Syndrome APS Forum

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diane1428 profile image
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Hi Everyone, finally had my third acupuncture session on Thursday. So far not really helped which is so disappointing as the first two gave me significant pain relief.

My fourth is in 10 days time, Ill see how that goes.

In the meantime will have to get intouch with my doctors as I have significant pain in chest and in what seems to be my left kidney also getting leg cramps that actually makes my leg give away. Not sure if its the APS or Lupus. Best get it checked I think.

Hope all of you are okay and wish you all the best.

Regards Diane

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diane1428
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7 Replies
MaryF profile image
MaryFAdministrator

Hi there, with symptoms like that you need to get in touch very quickly with your doctor plus your consultant, (presuming they understand fully about Hughes Syndrome/APS nd Lupus), please do not be fobbed off. MaryF

Manofmendip profile image
Manofmendip

Hi Diane

I agree with Mary.

Dave

diane1428 profile image
diane1428 in reply toManofmendip

Thank you to you both. I have phoned the docgtors surgery this morning to discuss this with them. I will ask to be referred to the consultant. To be honest I should have done it 4 months ago and keep putting it off. We all know what we should do but hope that it goes away. We also all know it wont.

Will let you know how I get on.

Regards Diane

david1970 profile image
david1970

It is possible to have acupunture while taking coumadine?

clairann2000 profile image
clairann2000 in reply todavid1970

FOR SURE YES....you do not bleed so it's fine...unfortunately it didn't help me, but it does help many apparently

diane1428 profile image
diane1428

Hi Daavid1970 yes you can have acupuncture with coumadine as long as your acupuncturist is willing to give it to you with doctors approval especially if your INRs are over 2.0. My acupuncturist and my doctors had a very long discussion apparently to decide.

Holley profile image
Holley

Diane,

I'm glad to hear you contacted your doctors. I was diagnosed with APS in 2006. Subsequently, I've been diagnosed with Stage 1 Chronic Kidney Disease and test positive for microscopic blood in my urine. A few years ago I was diagnosed with more severe kidney issues. Plus, I suffer from intense leg cramps on almost a daily basis.

Glad you're able to do acupuncture. I used tobut my doctors told me not to. I think it's due to possible infection from the needles and the fact I have a mechanical heart valve.

Hope you're able to get some answers soon,

Lisa

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