I am in a kind of dilemma (not a bad one).
My health situation is that I have APS (Antiphospholipid Syndrome), ITP (my immune system is destroying the platelets), PTC (Pseudotumor Cerebri). In the last 14 months I had 1 small CVA and 4 TIA, the last last week.
I am followed in an hospital that is close to my home (20 minutes walk). I am followed by a neuro-ophtalmologist (for PTC), a neurologist specialized in strokes, a neuro-immunologist, a rheumatologist and a haematologist. All are very competent and all have a good knowledge of APS in their domain.
What is missing is a specialist in APS.
I have the possibility to be followed in another hospital and see a specialist of APS there. The problem are that this hospital is far (1 hour by car, 1 hour and half by bus) and that I will have to be followed by specialists only in that hospital.
In both hospital they are in the opinion that I should be followed in a single hospital. And my assurance won't allow me to see two doctors with the same speciality in two hospital.
Now I don't know what is the importance of a specialist in APS and I am not sure if I should switch or not. I would love your opinion on that subject.