Hello. I was diagnosed 2 days ago with Hughes Syndrome and I cried. Not in fear but in that someone had finally found out what was wrong. See I live in Colorado in the USA and all my life since childhood I've had pain in my limbs heavy menses,migraines that put me in bed for 3 days, a child born at 24 wks due to eclampsia another at 27 wks at 21 yrs that lived. At 32 I got a clot in my illiac artery and since last November I have had a splenic infarct, PE and small renal clot. My docs kept saying all that was wrong was my anticardiolipids were high. Well guess what? THAT WAS THE ANSWER!! It took me demanding to go to University Hospital where Dr Jill Schofield took one look at my history,my skin and diagnosed me in 5 min. I am beginning treatment and so excited to reclaim my life at 38. God Bless you Dr Hughes for giving people like me and even my mother who was wrongly diagnosed with MS our lives back!
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