Meeting in 2016: Does anyone know when... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Meeting in 2016

designer16 profile image
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Does anyone know when the meeting is in May 2016. I live in California USA. Prof Hughes told me I should go but the last 2 years I have missed the date by a couple of days. I need to make my appointment with Prof Hughes this week or beginning of next week. I can only spend 10 days in London. Mary maybe you have the answer.

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MaryF profile image
MaryFAdministrator

I shall be there myself on 18th May 2015. MaryF

in reply to MaryF

Hi Mary - I was hoping to run a few workshops in the morning next year and had one in mind you may be able to help with :)

I'm busy moving the office at the moment but will be in touch once I've landed in the new home, but is it something you'd be interested in doing?

MaryF profile image
MaryFAdministrator in reply to

I am happy to help, and is probably best if us three administrators do it together for the breadth of expertise, input and life experience between us. So in essence yes, give me a ring when you can. MaryF

in reply to MaryF

This was more in your patient advocacy role and not HU related. I've already booked up a speaker from Health Unlocked to talk about this forum, but will of course, involve the administrators on that :)

MaryF profile image
MaryFAdministrator in reply to

Yes I can do patient advocacy. Certainly, and I may be able to involve somebody quite useful in that. MaryF

MaryF profile image
MaryFAdministrator in reply to

I would wish to do it as a joint venture re Advocacy as two or three heads are better than one. I will of course be travelling up the night before, and would plan things well in advance.

MaryF

in reply to MaryF

That may indeed be possible Mary - I was just sounding you out whether it was something you'd be interested in ... and am really pleased you are :)

Will be in touch once the move is out of the way.

Thanks, K

MaryF profile image
MaryFAdministrator in reply to

Best of luck with that, this time one year ago I had just moved house! It seems like years ago now..! MaryF

in reply to MaryF

Thanks! I can't believe the number of moves I've had in the last few years - two years ago we moved house, then last year I sold my mother's house and moved her, we also sold my husband's Nan's house and moved her, then this year we moved my in-laws and now I'm moving office (for the third time).

I really hope this is the last move for some time! At least it's to a decent place with room for expansion :)

jetjetjet profile image
jetjetjet

Wow a quick trip to England would be nice to see the DC !!

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