i have been under investigation for Antiphosphilipid for 2 years now and only had three sets of bloods done. Every time I had them done the results are negative. I have every symptom known to man. My Neurologist put me on warfarin and since I've been on that my symptoms are 90% better than what they were. My INR has been spot on and where it should be.
Today I've been back to the Neurologist for my check up and he was 1 1/2 hours late for my appointment so I felt really flustered when he was speaking to me. I have memory problems and forget what I want to say/ask and been rushed I forgot to ask the questions I should have. He said that although he is pretty sure but won't commit to making a proper diagnosis that I have APS and that you don't need a positive blood result to have it and I have every possible symptom you can have with APS. He wants to take me off the warfarin to see if I get poorly without it as this is the only way (he said) that I can be diagnosed.
I'm not happy about stopping my warfarin as the Neurologist said he's pretty sure I have it. Why would I have to stop something that is making my symptoms loads better and to back to feeling constantly ill like I did before starting the medication? Has having a negative result but been put on warfarin and feeling better only to be taking off it again to see if you get unwell happened to anyone else?
I'm well confused.