Inr: Hi guys Karen again. As im so new... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,402 members10,612 posts

Inr

12 Replies

Hi guys

Karen again. As im so new too all of this and not having seen my hemologist speacilist as yet ( appointment booked for the 29th sep perth western australia)

My last INR said my reading was at 0.9

After reading all the latest discussions most have said their readings should be around 3.0 ???

So is mine way too low ?

Sorry im so green on all of this. I am currently only on asprin.

I have had a brain stroke which is why this was discovered thinking it may be MS with all my symptoms.

Thanks for the help.

Karen.

Read more about...
12 Replies
Manofmendip profile image
Manofmendip

Hi Karen.

What medication are you taking, as INR is only affected by taking Warfarin.

Dave

in reply toManofmendip

Hi Dave

Currently only on Asprin.

Lure2 profile image
Lure2

Hi Karen,

As Dave has said you do not take INR when you are on Aspirin. That is not an anticoagulation drug as Warfarin and Fragmin for ex.

Before I started Warfarin they thested my INR-level and it was 1.0. Most people who are not on anticoagulation have that level.

Perhaps it is that INR-number you mention now (0.9). Hope you see your Specialist of APS soon and can start your anticoagulation therapy. I guess you have not yet started taking Warfarin-tablets?

Let us hear from you how it goes!

Kerstin

MaryF profile image
MaryFAdministrator

Hi there, you have had two sensible answers, your INR does not apply until you are on Warfarin. Please do have a really good look around the charity website for all the information, plus reading the posts on here from all the different members is always a learning curve, best wishes. MaryF

Hi

Than why would they have me on Asprin if its not an anticoagulant medication. ??

Thats what I was told as it thins the blood.

cant wait to see the hematology special ist to sort this out.

I have check out the website.

Thanks again.

Manofmendip profile image
Manofmendip in reply to

It's an anti-platelet medication that makes the platelets less sticky. Anti-coagulants work differently and generally lengthen the clotting time.

Dave

Yissica profile image
Yissica in reply to

Aspirin has an effect on a different part of the clotting cycle and is an antiplatelet drug. It is often enough for APS patients unless they have symptoms other than infertility. I was on aspirin for 8 years post diagnosis t an IVF clinic. This is the recommended treatment for gynecological APS (i.e. only miscarriages and fertility issues). The aspirin allowed me to conceive and then post pregnancy remain well for 8 years. It also stopped my migraines in 1 week!

I was only switched to warfarin after a transient stroke and following advice to the stroke unit by a hematologist.

INR is specific to warfarin and will be 0.5 -1 in any non-anticoagulated patient.

See the link below which explains the difference between antiplatelet and anticoagulants. Both are effective treatments to prevent clot formation.

strokeassociation.org/STROK...

Thanks Dave. Im generally so confused about all this and at a loss right now.

Thanks for the help again.

Well...im pretty well confused and fuzzy logic most of the time anyway 😊

Lure2 profile image
Lure2

Hi again Karen,

I was on Aspirin after my first TIAs and ev ministroke 13 years ago. It helped me a lot but after an Operation I was worse and several doctors told me to start Warfarin.

I was very suspisious to start Warfarin at first but after I read "Sticky Blood Explained" by Kay Thackray I understood that i had APS because I had the same symptoms like her. The bloodtests showed all the three antibodies positive and in high titres. They are still high.

At that time I knew nothing about APS and it was less doctors knowing about it also.

I want to wish you GOOD LUCK now and hope you have found a doctor who really is a Specialist as this is exstremely important to be right treated. This illness is for life but with the right treatment you can feel much better.

Kerstin

Thank you kerstin

I have just read sticky blood by Kay and yes my symptons tick off one by one as she described.

I have actually come to conclusion that I have had this for a very long time. I recently discovered that perthes disease which I had as a child can be caused by aps. I had that a 7 yrs.

Great information. Thank you so much.

david1970 profile image
david1970

After the antibodies have been detected in my blood, I was put on aspirin. They switch to coumadin after I had a TIA.

I was told that there are many people who have the antibodies without any health problems. For these patient there is no reason to take a drug who interact with a lot of food and drugs and has hemorrhagic risks.

Aspirin is an easy drug, with almost no risk. If there is not a clotting event there is no reason to take coumadin

I was surprised that your INR was less than 1. I found in wikipedia that the normal range is between 0.8 and 1.2. So with 0.9 you have a normal INR as it should be for someone who doesn't take Coumadin.

Hi Dave

I read the same thing but I have had a Stroke to the brain so that is how after all my symptons for last years had come to the a head.

At first they thought I was looking at ms after countless testing mri's cat scans ect.

My blood was tested by a speacilist that picked it up.

There was another anticoagulant blood test done which picked up the "sticky blood".

I have also previously had perthes disease that can be a secondary cause of Asp.

I have found that one out myself.

My conclusion is that I have had this for many many years without it being detected.

Hopefully after my next speacilist visit. I can get some more answers.

Cheers

Karen.

Not what you're looking for?

You may also like...

INR etc

Hello all Following yet another hospital with pneumonia my INR is bouncing all over the place from...
judes profile image

INR Dropping

Hi, My INR is all over the place at the moment and it takes forever for it to climb back up....
LesJames profile image

inr?

hi all. on thursday i had my inr tested and it was at 2 so kept me on 5mg of warfrin and to be...
chapman profile image

Stabilising INR levels.?

Sorry I have another question. I have had 11 blood clots since 2005. Most of them in my abdomen. My...
Mystynzl profile image

INR TESTING

All, would appreciate your feedback on the following please. I invested in the Roche CoaguChek XS...
1818hst profile image

Moderation team

See all
KellyInTexas profile image
KellyInTexasAdministrator
HollyHeski profile image
HollyHeskiAdministrator
lupus-support1 profile image
lupus-support1Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.