Ive had 7 PE's even while taking warfarin. Had a stroke and a number of TIA's and a Heart attack. But i also have a number of other health issues. Angina, Coronary heart disease, Murmur of Pulmonary Valve, High Blood Pressure, High Cholesterol, Irritable bowel syndrome, Hiatus hernia and Oesophagitis , Under active thyroid, Venous Insufficiency , Night cramps, Asthma, Osteoarthritis, Osteoporosis, Anaemia, Insomnia, Chronic fatigue syndrome, Fibromyalgia and Back problems discs sciatica, and in the last year ive got a pyoderma gangrenosum ulcer on my leg. What other illness's seem to go with APLS?
I got told i had APLS when i had my first clot 22 years ago, and since then ive added illness'es every couple of years/ year. They just get written in my health record and a tablet given. I have serious pain issues and i got seen at the local hospital pain management clinic, so what ever illness causes me more pain i get told that my other painkillers will work .. well they dont.
Ive noticed that people mention anticardlollpin (aCL) the lupus anticoagulant (LA) and anti-beta2-glycoprotein1(anti-B2GP1) mentioned as this is how you get the diagnosis of Hughes Syndrome /Antiphospholipid syndrome (APS). Ive never seen if ive had that done when they have been testing my blood and as nobody has said anything to me.
Im aware that warfarin is not controlling my INR. I did have a bridging of Fragmin injections on top of my warfarin when i had a total knee replacement operation for 12 days using
So how do i go about self testing of myself? and what would the benefit be for me?
Would i be better trying to see a Rheumatologist, or a haematologist, Im not sure if there is a APLS specialist in the staffordshire?
thanks in advance for your help.