Hi all, I have not been on here for a while having a number of issues that seem to have taken the limelight ! Stupidly I had not fully appreciated how these might be connected but I would love any advice feedback re whether any of you have experienced similar:
I had a mumps like virus which lead to meningitis two years ago which in turn lead to an autoimmune heamolytic aneamia and was off work for nearly a year. At the time the medics said they did not think this was connected (to APS) especially as i am now 'sero-negative.'
My latest bout has been a similar virus and hideous head ache (not as bad as last time) waking me at night or coming on after lying down. It seems I worked out I must have raised intercranial pressure and got myself referred to neurology for an unsuccessful lumbar puncture and CT scan. This revealed no clots but a meningioma which they thought was not causing the problems. I am waiting for a neuro ophthalmologist appt, then possibly back to neurology.
Questions are - is there anything i can do to manage the symptoms while waiting ? (I 'sleep' sitting up and have increased my (75mg) asprin to twice a day) Should i be pushing for better anticoagulation if they are all connected.