Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,392 members • 10,588 posts

All posts for May 2014

Clear liquid suddenly streaming from nose has anyone else ever had this?

This morning without warning suddenly clear liquid was streaming from my nose, it stopped then started again 5 mins later. It has stopped now and i have docs...

This morning without warning suddenly clear liquid was streaming from my nose, i...

beckyb

•10 years ago

11 Replies

Hi I suffer from pains in my head quit a lot in all different places including at the back of my eye that comes and go's

It started off I had a flu like virus and then got mouth thrush the doctor put me on antibiotics witch made me get pains in my head and have had it ever since...

It started off I had a flu like virus and then got mouth thrush the doctor put m...

Glewberry

•10 years ago

7 Replies

Starting Arixtra and coumadin today...

So I'm six days post op from laproscopic surgery for a hemmhoraging ovarian cyst and my hematologist is starting me back on coumadin along with two days of...

So I'm six days post op from laproscopic surgery for a hemmhoraging ovarian cyst...

Mom3mmc

•10 years ago

4 Replies

Want to take advantage of all our features? Just log in!

A post taken from Hughes Syndrome Foundation by Kate H

For those of you who are gym bunnies or like tackling climbs, marathon, triathlons etc - good news: research has found the acute physical exercise is safe for...

For those of you who are gym bunnies or like tackling climbs, marathon, triathlo...

MaryF

Administrator•10 years ago

7 Replies

I want to change my GP. Can anyone advise me if it's possible to speak to new GP or practice manager before making the change?

AvsG

•10 years ago

18 Replies

I am on 6 mg of Warfarin a day but take 7 mgs on Tuesdays only for the past three weeks. I noticed that I wake up with a sinus headache

the morning after I take the 7 mg. I thought it was a coincidence but it's consistently the morning after and it lasts through the day. I don't get my blood...

the morning after I take the 7 mg. I thought it was a coincidence but it's cons...

loretta1106

•10 years ago

8 Replies

Rheumatologist today

Finally the day has arrived and im off for my first rheumatologist appointment. I was diagnosed with Aps in 2006 after recurrent miscarriages and have only...

Finally the day has arrived and im off for my first rheumatologist appointment. ...

ccurrey79

•10 years ago

13 Replies

Update re warfarin but no clots

As you know some of my consultants have argued as per the NICE guidelines that maybe I should not be on warfarin as I have not had proveable clots "just" late...

As you know some of my consultants have argued as per the NICE guidelines that m...

stillwaiting

•10 years ago

15 Replies

HORRAY

Thanks to my nephew My computer SHOULD be working again!! Sorry if i put a scare out there - I am having problems with clotting. even with all the...

Thanks to my nephew My computer SHOULD be working again!! Sorry if i put a sc...

jetjetjet

•10 years ago

5 Replies

What kind of pain moves around? Nerve? Muscle? Inflammation?

I read someone's entry about pain that moved around and it sounded like me. I keep asking the doctor, How can the pain move, but he doesn't say anything. For...

I read someone's entry about pain that moved around and it sounded like me. I k...

share-a

•10 years ago

14 Replies

APS and anxiety. Would like to hear from other's experiences.

Hi all, I was just diagnosoed with APS last week, after a year of going through hell. My symptoms were continually misdiagnosed as anxiety (tremors, brain fog,...

Hi all, I was just diagnosoed with APS last week, after a year of going through ...

danap

•10 years ago

18 Replies

Confused.com

After seeing my rheumatologist and having lots of blood tests done I got the results yesterday, and turns out I have lupus and at the next appointment I'm...

After seeing my rheumatologist and having lots of blood tests done I got the res...

bevjane74

•10 years ago

6 Replies

I need to know how long before a flight do I need to inject myself!?

Liverpool55

•10 years ago

6 Replies

Wondering if I could get advice on what food to eat on warfarin. I want to make sure I am eating the right things.

But a bit confused by it all.

Hidden

•10 years ago

11 Replies

Could it be a clot ?

Hi , I feel some sort of focal pain at my calf . It's not very painful . But definitely present and on the same focal point over a few days. Coult it be a clot...

Hi , I feel some sort of focal pain at my calf . It's not very painful . But def...

JoeyIM

•10 years ago

14 Replies

Hi all! Just wondering if any of you ladies had completely healthy pregnancies before a Hughes diagnosis.

I'm experiencing all sorts of interesting symptoms after a missed miscarriage. At 8 weeks an ultrasound measured me at 6w3d with a strong heartbeat, then two...

I'm experiencing all sorts of interesting symptoms after a missed miscarriage. A...

Ablatz

•10 years ago

21 Replies

What over the counter meds for stomach upset can I take with Warfarin? Before Warfarin I took Alka Seltzer and Pepto Bismol.

I was told I can take gas x and imodium. Are there any other OTC meds I can take without aspirin? Thank you.

I was told I can take gas x and imodium. Are there any other OTC meds I can tak...

loretta1106

•10 years ago

10 Replies

Hughes Syndrome/APS - and for those of us with Thyroid issues. 2014 Thyroid UK Conference

Yesterday was great at the well arranged HSF Patient's Day. Thyroid UK had a stand there with lots of information, As many people with autoimmune conditions...

Yesterday was great at the well arranged HSF Patient's Day. Thyroid UK had a st...

MaryF

Administrator•10 years ago

1 Reply

Warfarin and sinus headaches. I'm on 6 mg of warfarin a day and was recently told to take 7 mg just one day a week.

My INR was fluctuating and sometimes going below desired range. I noticed that the day after I take the 7 mg I have a sinus headache. I've always had sinus...

My INR was fluctuating and sometimes going below desired range. I noticed that ...

loretta1106

•10 years ago

19 Replies

Nhs choices

Does anyone know if you can choose where you see a APS specialist. I had an appointment with my GP and requested that I be referred to St Thomas's in London....

Does anyone know if you can choose where you see a APS specialist. I had an appo...

Dee121

•10 years ago

8 Replies

I have a question for the ladies. I have Hughes Syndrome and I am on warfarin. So how does it work if you want to have a kid?

MJPrachyl

•10 years ago

13 Replies

Going To miss our Sheena

Sorry my friend I am a few days behind the rest of the world----Saying good bye to you is going to be hard for me. :-( So please stay in touch --god love you...

Sorry my friend I am a few days behind the rest of the world----Saying good bye...

jetjetjet

•10 years ago

2 Replies

Welcoming Lure2 (Kerstin) as an Administrator

A big welcome to Kerstin who has agreed to become an Administrator and kindly help us out with some part time Administration. Thank you very much. MaryF x

A big welcome to Kerstin who has agreed to become an Administrator and kindly he...

MaryF

Administrator•10 years ago

24 Replies

I had stroke in 2007, always having headaches is normal? i have hughes Syndrom, my inr is usually 3.6 - 3.9 is to lower? it is normal or not

I take plaquenel 200mg, rampril, none of doctors has answer, it could my scar tissue of my stroke 2007, or could my Hughes, or my INR is to lower, thanks for...

I take plaquenel 200mg, rampril, none of doctors has answer, it could my scar ti...

msperling

•10 years ago

9 Replies

Question for Mary

Hello Mary, May I ask you a question? I notice that a few times you have mentioned that you exercise, and wondered if I may ask what tpypes of exercise you......

Hello Mary, May I ask you a question? I notice that a few times you have mention...

donnabrain

•10 years ago

17 Replies

Has anyone tried the blood group diet by Dr. Peter D'Adamo? My blood type is O which requires me to avoid wheat and eat red meat & red fruit

Two years ago I had a stroke and was consequently diagnosed as having APS. A nutritionist told me about a blood group diet by Dr D'Adamo, which helps alter my...

Two years ago I had a stroke and was consequently diagnosed as having APS. A nut...

Tess43

•10 years ago

11 Replies

I started Warfarin in March and live in New York. I don't love the testing and diet restrictions. What are the generic alternatives?

I am becoming aware of Fragmin through this site. Is Fragmin a generic form of Heparin? Are there any alternatives in generic form that do not require...

I am becoming aware of Fragmin through this site. Is Fragmin a generic form of ...

loretta1106

•10 years ago

32 Replies

Warfarin resistant?

Hi, Has anyone been told they are warfarin resistant? I'm interested to know how this conclusion was reached and what happened with APS treatment afterwards....

Hi, Has anyone been told they are warfarin resistant? I'm interested to know how...

Squeezer

•10 years ago

21 Replies

Memory issue

I've been feeling a bit out if it this week, aches, pains and fatigue - also my memory has been really bad, affecting my work. Can anyone recommend something...

I've been feeling a bit out if it this week, aches, pains and fatigue - also my ...

NBtired

•10 years ago

13 Replies

Warfarin is causing depression & low mood

Hi there, I have to take warfarin for life. It is killing my mood and happiness and I wonder, does anyone have a similar experience? I am looking into trying...

Hi there, I have to take warfarin for life. It is killing my mood and happiness...

FunkyPixie

•10 years ago

47 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for May 2014

Clear liquid suddenly streaming from nose has anyone else ever had this?

Hi I suffer from pains in my head quit a lot in all different places including at the back of my eye that comes and go's

Starting Arixtra and coumadin today...

A post taken from Hughes Syndrome Foundation by Kate H

I want to change my GP. Can anyone advise me if it's possible to speak to new GP or practice manager before making the change?

I am on 6 mg of Warfarin a day but take 7 mgs on Tuesdays only for the past three weeks. I noticed that I wake up with a sinus headache

Rheumatologist today

Update re warfarin but no clots

HORRAY

What kind of pain moves around? Nerve? Muscle? Inflammation?

APS and anxiety. Would like to hear from other's experiences.

Confused.com

I need to know how long before a flight do I need to inject myself!?

Wondering if I could get advice on what food to eat on warfarin. I want to make sure I am eating the right things.

Could it be a clot ?

Hi all! Just wondering if any of you ladies had completely healthy pregnancies before a Hughes diagnosis.

What over the counter meds for stomach upset can I take with Warfarin? Before Warfarin I took Alka Seltzer and Pepto Bismol.

Hughes Syndrome/APS - and for those of us with Thyroid issues. 2014 Thyroid UK Conference

Warfarin and sinus headaches. I'm on 6 mg of warfarin a day and was recently told to take 7 mg just one day a week.

Nhs choices

I have a question for the ladies. I have Hughes Syndrome and I am on warfarin. So how does it work if you want to have a kid?

Going To miss our Sheena

Welcoming Lure2 (Kerstin) as an Administrator

I had stroke in 2007, always having headaches is normal? i have hughes Syndrom, my inr is usually 3.6 - 3.9 is to lower? it is normal or not

Question for Mary

Has anyone tried the blood group diet by Dr. Peter D'Adamo? My blood type is O which requires me to avoid wheat and eat red meat & red fruit

I started Warfarin in March and live in New York. I don't love the testing and diet restrictions. What are the generic alternatives?

Warfarin resistant?

Memory issue

Warfarin is causing depression & low mood

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