Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,392 members • 10,588 posts

All posts for May 2014

Quitting work?

Is anyone aware if you have to finish your job because its affects on your health, can you claim benefits such as DLA. I'm not diagnosed with Lupus but APS so...

Is anyone aware if you have to finish your job because its affects on your healt...

Dee121

•10 years ago

15 Replies

A temporary goodbye I hope and a big thank you to one of our first ADMINISTRATORS Jessielou

Hi there Jessielou (Sheena) is going to take a little break from being an administrator. She will be very much missed having been on board since the very...

Hi there Jessielou (Sheena) is going to take a little break from being an admini...

MaryF

Administrator•10 years ago

8 Replies

Paranoia??

Hi all, Today I have a pulled muscle in the back of my calf... I think. I have done nothing to pull a muscle and it's been getting more painful all day. Legs...

Hi all, Today I have a pulled muscle in the back of my calf... I think. I have ...

phoenix77

•10 years ago

14 Replies

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Hi there :)

Hi folks . I am writing from Singapore . I was diagnosed with APS 2 years ago after 2 miscarriages. I also have endometriosis . I came across this forum...

Hi folks . I am writing from Singapore . I was diagnosed with APS 2 years ago af...

JoeyIM

•10 years ago

12 Replies

Musculoskeletal problems

Hi all, ive been having a dull pain in my chest/breast now since before xmas - my gp can feel what she thinks is muscoskeletal, i have lots of muscle...

Hi all, ive been having a dull pain in my chest/breast now since before xmas - m...

emmaj

•10 years ago

2 Replies

Professor Graham Hughes' April Blog 2014

April 2014 “The serious facts about funny turns”. So ran the headline in one of this week’s free newspapers – the Metro. In many ways it highlights some of...

April 2014 “The serious facts about funny turns”. So ran the headline in one o...

MaryF

Administrator•10 years ago

9 Replies

Hospital Visit

Hi Everyone. In need of some advice and wondered if anyone could help please? I posted 6 months ago about me asking for a referral with an APS specialist at...

Hi Everyone. In need of some advice and wondered if anyone could help please? I ...

crista1

•10 years ago

11 Replies

My APS husband has had two strokes (first 10 years ago, second last August) and this week a probable TIA. The neurologist given to us by

the hospital put him on 81mg aspirin along with the warfarin he takes because his INR was 2.5 when we got here and has been in the mid 2s to low 3s for months....

the hospital put him on 81mg aspirin along with the warfarin he takes because hi...

grammy4him

•10 years ago

17 Replies

Will I seem too pushy

So, after being unwell for 10 years,diagnosed for 7 and having merry go round of different Drs. disagreeing with diagnosis and getting it re-instated and all...

So, after being unwell for 10 years,diagnosed for 7 and having merry go round of...

donnabrain

•10 years ago

5 Replies

Hi I am getting checked for hughes disease in September if it's positive can you still work in construction

buns

•10 years ago

8 Replies

A bit peeved

Went to Drs. today sometimes I get an "egg" on the side of my ankle , but have never managed to co-ordinate an appt to when it is there Is that inflammation? I...

Went to Drs. today sometimes I get an "egg" on the side of my ankle , but have n...

donnabrain

•10 years ago

7 Replies

Desperate need for a good consultant!

Firstly hi to all members. Hope your all keeping well. As for me I was diagnosed in 2005 with Lupus Anticoagulant, never really understood the condition and...

Firstly hi to all members. Hope your all keeping well. As for me I was diagnose...

Dee121

•10 years ago

14 Replies

How can I boost my immune system?

Hi I have Antiphospholipid syndrome and for the passed 6 weeks I have been unwell with one thing after another. I have had a Bacterial Infection, 24 hr on...

Hi I have Antiphospholipid syndrome and for the passed 6 weeks I have been unwe...

Stannington-lad

•10 years ago

4 Replies

Raising INR ??

I know our bodies absorb warfarin differently and that there are many lifestyle factors which will make that even more individual but......... have you had...

I know our bodies absorb warfarin differently and that there are many lifestyle ...

stillwaiting

•10 years ago

36 Replies

Hi, everyone it's been a while. I have anti-cardilipion antibodies and lupus anticougoulant, and kidney failure. My parathroid gland is

extremely high (752) dr says should be in the 300 -400 range does this often show up when someone has the above

extremely high (752) dr says should be in the 300 -400 range does this often sho...

strawberryblonde

•10 years ago

3 Replies

Can Sjogren's be intermittent ?????

I am awaiting a Labial Gland Biopsy for Sjogren's due to my bloods being negative even though I have all the symptoms.......or should i say did. My mouth has...

I am awaiting a Labial Gland Biopsy for Sjogren's due to my bloods being negativ...

Jillymo

•10 years ago

12 Replies

What is an IgM Anti-Cardiolipin blood test?

I have had my IgM Anti-Cardiolipin tested 3 times in the past 6 months. Results have been, 22, 35.5 and last week was 53. I know the normal range is between...

I have had my IgM Anti-Cardiolipin tested 3 times in the past 6 months. Results ...

123mif

•10 years ago

2 Replies

Does anyone else experience head pain where randomly you'll feel like your head is being intensely squeezed/spinned for a couple of seconds?

I have had headaches all of my life (chronic migraines/ tension headaches- it's hereditary) but also I have had this kind of randomly excruciating pain in my...

I have had headaches all of my life (chronic migraines/ tension headaches- it's ...

Eisacsson1

•10 years ago

6 Replies

Should I get a second opinion?

I had been having pins and needles in my chest, arms and back on and off for about 4 days. Therefore I went to my local GP, he checked my pulse which was 115...

I had been having pins and needles in my chest, arms and back on and off for abo...

SEJ19

•10 years ago

11 Replies

Leg still in pain

Day 5 of leg clots and still no relief -hard bump still there. taking my heavy pain meds and still can't stand -sit -lye down -recline in chair- prop my 8...

Day 5 of leg clots and still no relief -hard bump still there. taking my heavy ...

jetjetjet

•10 years ago

12 Replies

Does anyone have sinus pain while on warfarin

Or could it just be my hayfever getting worse

Hidden

•10 years ago

7 Replies

Apologies for my absence :(

Hi everyone. I'm so sorry I've not been about as much as I used to. I've just been rather busy with one thing and another. I still haven't been for my follow...

Hi everyone. I'm so sorry I've not been about as much as I used to. I've just b...

TreyBon64

•10 years ago

20 Replies

research papers and medical records

Hi all, sorry about this, I think I may be going for most questions asked in a short period of time. My questions this time are twofold; 1) Has anyone...

Hi all, sorry about this, I think I may be going for most questions asked in a s...

phoenix77

•10 years ago

17 Replies

Kate H @ St Thomas --

Kate is it common to have superficial or shallow vein clotting - when your anti-coagulation is supposedly good { as good as I get }} with my history. Have...

Kate is it common to have superficial or shallow vein clotting - when your anti...

jetjetjet

•10 years ago

11 Replies

My doctor suggested to switch me from Warfarin to Xarelto because we cannot keep my INR stable. Is it yet approved för APS anywhere?

I have read your posts about this but find many of them being old, perhaps there is some later news? I am a bit worried about changing, I did meet a reumatolog...

I have read your posts about this but find many of them being old, perhaps there...

Aica

•10 years ago

15 Replies

Teeth

Does any one esle have problem with teeth who are suffering APS/LUPUS In the last 3 months i have had to have two teeth removed via the hospital and now have...

Does any one esle have problem with teeth who are suffering APS/LUPUS In the l...

teadonna

•10 years ago

6 Replies

On the BBC News Today

http://www.bbc.co.uk/news/health-27222450 MaryF

MaryF

Administrator•10 years ago

14 Replies

Hi, can any help me?, I have pain in my heels & cannot put them on the ground, I am finding it very hard to walk. I do have fibromyalgia ,

Miggie

•10 years ago

7 Replies

More shallow vein clotting -

LEG IN PAIN , THEY PROBED BEHND KNEE then brought in Vascular specialist-- they sent results to PCP on call and his answer was -- anti coagulation looks good...

LEG IN PAIN , THEY PROBED BEHND KNEE then brought in Vascular specialist-- the...

jetjetjet

•10 years ago

15 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for May 2014

Quitting work?

A temporary goodbye I hope and a big thank you to one of our first ADMINISTRATORS Jessielou

Paranoia??

Hi there :)

Musculoskeletal problems

Professor Graham Hughes' April Blog 2014

Hospital Visit

My APS husband has had two strokes (first 10 years ago, second last August) and this week a probable TIA. The neurologist given to us by

Will I seem too pushy

Hi I am getting checked for hughes disease in September if it's positive can you still work in construction

A bit peeved

Desperate need for a good consultant!

How can I boost my immune system?

Raising INR ??

Hi, everyone it's been a while. I have anti-cardilipion antibodies and lupus anticougoulant, and kidney failure. My parathroid gland is

Can Sjogren's be intermittent ?????

What is an IgM Anti-Cardiolipin blood test?

Does anyone else experience head pain where randomly you'll feel like your head is being intensely squeezed/spinned for a couple of seconds?

Should I get a second opinion?

Leg still in pain

Does anyone have sinus pain while on warfarin

Apologies for my absence :(

research papers and medical records

Kate H @ St Thomas --

My doctor suggested to switch me from Warfarin to Xarelto because we cannot keep my INR stable. Is it yet approved för APS anywhere?

Teeth

On the BBC News Today

Hi, can any help me?, I have pain in my heels & cannot put them on the ground, I am finding it very hard to walk. I do have fibromyalgia ,

More shallow vein clotting -

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