What kind of pain moves around? Nerve? Muscle? Inflammation?

[share-a]

I read someone's entry about pain that moved around and it sounded like me. I keep asking the doctor, How can the pain move, but he doesn't say anything. For example. I had a very bad pain in the back of my left pelvis. So bad I though maybe I broke it somehow. A week later it had moved to the rear/left side, and now it is slightly on the front of the left side. At least I know nothing is broken.

[Lure2]

Hi,

First of all and most important: Have you been diagnosed with Hughes Syndrome (APS)? You write nothing of that. Because on this site we all have APS and we are not allowed to answer Medical questions only try to help if we can with info etc.

Best wishes from Kerstin in Stockholm

[share-a in reply to Lure2]

No I have not been diagnosed with APS. I wrote all my symptoms in google and it took me to your site.

[MaryF Administrator]

Hi, who diagnosed your Hughes Syndrome/APS, please do give us more detail. MaryF

[bevjane74]

I get severe pain that seems to just jump around my body I thought I was constantly in pain all over and just one place was more painful and dulling out the rest of the pain in my body, I was diagnosed with APS in February but. since have been diagnosed on the weekend as having lupus and apparently the pain move is consistent with that

[share-a in reply to bevjane74]

My jump around pain is mostly gone, or much less severe since I had shots in the spine. I had been diagnosed with Lupus a couple times, but they always change their mind. For 30 years I was told by many doctors that I had rheumatoid arthritis, but now I'm told that I don't have it and never did. I feel pretty good for 71.

[Manofmendip]

My colleague,Kerstin, has ask if you have APS/Hughes Syndrome and we must know this before we can give you any information or help. As Kerstin has said we are not medical professionals and cannot provide medical advice.

Best regards.

Dave

[share-a]

That is exactly what I ask my doctor. He had no reply. I still don't know.

[MaryF Administrator in reply to share-a]

These are the blood tests needed: Anticardiolipin antibodies (aCL)

Lupus anticoagulant (LA)

Anti-beta2-glycoprotein-1 (anti-B2GP1)

Also get your vitamin D, B12 and iron tested and a thyroid panel done. If you say where you are located we can help point you in the right direction. MaryF

[Lure2]

You wrote this one year ago.

I ask you the same to day: Do you have been diganosed with Hughes Syndrome and where do you live? We asked you this question one year ago because this is a site for Hughes Syndrome (APS). You did not answer.

If we are going to help you, you must communicate with us.

Kerstin in Stockholm

[share-a in reply to Lure2]

Sorry, My jump around pain is mostly gone, or much less severe since I had shots in the spine. I had been diagnosed with Lupus a couple times, but they always change their mind. For 30 years I was told by many doctors that I had rheumatoid arthritis, but now I'm told that I don't have it and never did. I feel pretty good for 71.

[Lure2 in reply to share-a]

I am also pretty good for being 71.

Kerstin

[Lure2]

if so I I should advice you to see an APS-Specialist and ask for the test also for APS.

Read also "Sticky Blood Explained" by Kay Thackray, who has got APS and writes about all the symptoms and how it is to live with this illness. It is a very good book if you think you have got APS. You can have APS also without the antibodies but it is wise to see a Specialist of APS who knows what to look for when you tell him your symptoms.

If you write about your symptoms it is easier for us to recognize if they may be related to APS.

Let us hear how it goes.

Kerstin

[Trudijane]

Hi,

I have asked the rheumatologist that I saw, why is my hip pain moving around (I'm talking about very acute pain in the hip area). What first brought me to the Dr. was an acute pain on the right side of my hip (when I walked) to the point that I felt that my whole leg would buckle. That lasted awhile, and I became very depressed. One day I woke up and that acute pain was gone. It still was uncomfortable but not painful. Then just as it had occurred on my right side - I felt an acute pain in my groin area (or the left side of my hip) when I walked. That is when I felt that the pain was moving around and I couldn't understand it. I got no answers except they blamed it on the osteoarthritist they found (with an x-ray) and calcific tendonitis. To me, it feels more like nerve pain and nothing to do with arthritis.

Then the pain in my groin went away - and NOW it's back on my right side again. I don't know what to make of it but either way I feel crippled as a result of the acute pain. All I take is ibuprofen every 6 hours. It helps a little but not enough.

When there is no pain on either side, my back feels very very stiff. I have my first appointment with Physical Therapy in a few days; I hope they can shed some light on this because I don't know how to live with this. All I know is that the acute pain seems to be moving around. Another Dr. feels it is nerve spurrs that are hitting on various nerves...makes sense to me - Anyone have such a problem?

[Lure2]

You have now answered a 3 year old question, so if you are diagnosed with APS like we are here, you should put your own new question here and you will get answers on your question. We have too thick blood (Hughes Syndrome or APS).