As you know some of my consultants have argued as per the NICE guidelines that maybe I should not be on warfarin as I have not had proveable clots "just" late miscarriages and maybe I have obstetric APS only.
My local rheumatologist has disagreed and thankfully kept me on warfarin adding in clexane when my INR is under 3 and I am having symptoms. My symptoms look like TIA's - face drops, speech slurred, right side weakness but last longer than TIA's - often months. Each time my memory is affected and I find reading really difficult - I can not understand what I read and can not track across the page.
Anyways - last week I went for my annual check up at ST T's fully expecting to be discharged - but I wasn't. And they said that in view of the most recent symptom flare they feel that I should be on warfarin. My local hematologist has also changed his mind after seeing how poorly I was when symptomatic.
So ye ha!! They are finally all singing from the same hymn sheet and I finally feel less piggy in the middle!
I am due an MRI next week as they all think the brain needs checking following this latest bad attack.
I fully understand the original argument re warfarin. I understand that it is a heavy drug. But I just thought I would post here because maybe you are in a similar situation having stroke like episodes but being warned about warfarin use.