A post taken from Hughes Syndrome Foundation by Kate H

[MaryF]

For those of you who are gym bunnies or like tackling climbs, marathon, triathlons etc - good news: research has found the acute physical exercise is safe for APS/Hughes patients

ncbi.nlm.nih.gov/pubmed/248...

MaryF

[loretta1106]

Thank you for this Mary. I went to the gym fairly regularly prior to my stroke in March and APS dx with Coumadin, At 67, did dance exercise, light weights and the exercise bike. Hopefully, I can slowly get back to more than walking. Exercise bike seems too much right now and various forms of aerobics seem to leave me not feeling well. I'll keep slowly trying to ease back into (maybe not acute physical exercise) but more vigorous exercise without worrying about it affecting my INR.

[MaryF Administrator in reply to loretta1106]

Yes I do a little bit every day, and feel much better for it! MaryF

[Lure2 in reply to loretta1106]

I do not think exercise will affect your INR. Do it every day as I do. You know CONSTANCY..........

Best wishes from Kerstin

[loretta1106]

But if I overdo--I suffer but how's one to know what their limits are if we don't try to push them a bit?

[MaryF Administrator in reply to loretta1106]

Yes I have five conditions, and my fatigue is awful at times. I tend to do things in ten minute sets and try for three a day, but do not give myself a hard time if I can't do all three sets. If I go for it, that is me, back to bed for a couple of days. This is often used as a teaching exercise for Lupus but fits us lot as well I think:

lupus.org.uk/patients-stori...

MaryF

[Lure2 in reply to loretta1106]

So true Loretta. I read the "spoon-theory" and noticed that I am lucky with only APS.

Best wishes to you from Kerstin

[loretta1106]

Thanks Mary and Kerstin. I can't get used to the tiredness after I maybe do a little too much, but I have to listen to my body and figure out what helps me and what hurts me. I also have to learn to do small amounts of exercise rather than overdoing it.