Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

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All posts for April 2014

Does anyone ever get red blotches on their face? Last week I started getting these red patches and I thought it was dry skin?

I do not know what other symptoms to be concerned about and any info would be greatly appreciated!

I do not know what other symptoms to be concerned about and any info would be gr...

AmandaH

•11 years ago

6 Replies

Texas support Group

Anyone know of a Texas support group?

MJPrachyl

•11 years ago

1 Reply

Does anyone have small red pin prick type marks on their body?

I've had them for years on arms and stomach but wasn't sure what they were.

Hidden

•11 years ago

10 Replies

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Rubbish day today

It annoys me immensly how unknowing the medical staff are regarding APS been to the rheumatologist today giving them a list of all my symptoms not only have...

It annoys me immensly how unknowing the medical staff are regarding APS been to ...

bevjane74

•11 years ago

5 Replies

What level does your blood test results need to be to be classed as positive for APS?

Mine so far have been 22 and 35.5. I am receiving results of my third blood test tomorrow. Many thanks.

Mine so far have been 22 and 35.5. I am receiving results of my third blood test...

123mif

•11 years ago

2 Replies

For those of you in the UK last night's Panorama on BBC1 - Who's Paying Your Doctor?!

http://www.bbc.co.uk/iplayer/episode/b041drpn/Panorama_Whos_Paying_Your_Doctor/ Worth a watch. MaryF

http://www.bbc.co.uk/iplayer/episode/b041drpn/Panorama_Whos_Paying_Your_Doctor/ ...

MaryF

Administrator•11 years ago

1 Reply

Going round in circles

Last friday as my INR was just 1.9 (target 3) I was given clexane - I had to ask for this. Dr knew nothing about it and looked up hospital letters and in his...

Last friday as my INR was just 1.9 (target 3) I was given clexane - I had to ask...

stillwaiting

•11 years ago

4 Replies

Round up of news from Hughes Syndrome Foundation

Lots has been going on with marathons being run, and money raised by good people, who of course do it for all the right reasons! These below are all posts...

Lots has been going on with marathons being run, and money raised by good people...

MaryF

Administrator•11 years ago

16 Replies

London Hughes Support Group Meeting. April 2014.

The next meeting is to be held on April 30th from 5.30 to 6.30pm in the Haemophilia unit on the first floor of the North Wing in St Thomas Hospital. Sofia...

The next meeting is to be held on April 30th from 5.30 to 6.30pm in the Haemoph...

YvonneW

•11 years ago

2 Replies

I have been fighting for my inr level since January. ...it's no wonder below 1.0....on taking shots and pills....no energy..loosingweight

And terrible headache s....avoiding green things....help!

paisleepark70

•11 years ago

2 Replies

Positive outcome???

So after waiting for years for my GP to refer me, I have been seeing a haematologist for 6 mths, 3 positive test results later, I have now got a referral to a...

So after waiting for years for my GP to refer me, I have been seeing a haematolo...

swx3

•11 years ago

4 Replies

Does anyone know a true specialist for APS in Kansas City, Mo ?

edgewater100

•11 years ago

6 Replies

Trying norethistat

Thanks to the previous posts about heavy menstruation I went to my doctors yesterday, he was a locum and i was a bit unsure as to whether he would agree to...

Thanks to the previous posts about heavy menstruation I went to my doctors yeste...

emmaj

•11 years ago

14 Replies

First time using heparin

Hi all, Warfarin doesn't seem to be helping me much these past few weeks - at target and above I still had slurred speech and weakness on the right side and...

Hi all, Warfarin doesn't seem to be helping me much these past few weeks - at t...

stillwaiting

•11 years ago

27 Replies

how to get my doctor to make referal to haemotologist

Hi I wondered if anyone could help, am brand new to this forum and wondered if anyone had any good advice. I was very recently diagnosed with APS after 2x...

Hi I wondered if anyone could help, am brand new to this forum and wondered if ...

Hidden

•11 years ago

30 Replies

Hi the newsworthy Heartbleed Security flaw, some basic tips

Hi guys, there has been plenty in the press about the latest virus which could be a problem on line, so some basic security tips. HU were alerted early and...

Hi guys, there has been plenty in the press about the latest virus which could b...

MaryF

Administrator•11 years ago

4 Replies

Warfarin Question and what to do next, advice please

Good morning, I was started on warfarin in November 2013 after a dvt in my left calf, after two blood tests I was diagnosed with APS after seeing my...

Good morning, I was started on warfarin in November 2013 after a dvt in my left ...

bevjane74

•11 years ago

11 Replies

I've finally got the answers I have been after for 17 years. Saw a haemotologist and he is putting me on warfarin. I was so relieved to be

Believed that I cried when I walked out. I'm pleased that I am finally on medication but im nervous of side affects I have read about. Just hope I can start to...

Believed that I cried when I walked out. I'm pleased that I am finally on medica...

Hidden

•11 years ago

7 Replies

Meds

I could use some advice on medications for APS. When I was first diagnosed, I was started on baby aspirin. Then, lovenox and baby aspirin during my...

I could use some advice on medications for APS. When I was first diagnosed, I w...

GraceEllie2012

•11 years ago

14 Replies

Oh! The joy of being a zebra!

First. To those who don't 'get' the 'zebra' thing: Here's the story/joke. So, you're on your back in Central Park NYC looking at the night sky (of course,...

First. To those who don't 'get' the 'zebra' thing: Here's the story/joke. So,...

GinaD

•11 years ago

33 Replies

My question is rather complex:

Should patients with Antiphospholipid Syndrome (such as I) be treated and dosed the same way as those persons without APS, but just have had a clot?

Should patients with Antiphospholipid Syndrome (such as I) be treated and dosed ...

Lhrlovesmar

•11 years ago

9 Replies

What else should I ask to be tested for?

Hi all, long time no posts. I have been going through a period of intense fatigue and muscle pains. My GP has done a few routine tests, thyroid etc... which...

Hi all, long time no posts. I have been going through a period of intense fatig...

phoenix77

•11 years ago

6 Replies

Does anyone else have Granuloma annulare a benign skin condition. It is caused by a autoimmune reaction and thought it might be related.

PGNYC

•11 years ago

9 Replies

Have found this and it is helpful for all warfarin users: http://www.warfarin.cz/downloads/nutescu.pdf

Am trying to understand the herbs that make a difference to my INR and diet.

Heather69

•11 years ago

1 Reply

Does quinoa affect INR?

Does anyone know if quinoa affects the INR? I'm hoping to make some bread and pasta with it as I can't eat grains.

Does anyone know if quinoa affects the INR? I'm hoping to make some bread and pa...

tassie

•11 years ago

8 Replies

Hi all. Was wondering,does anyone else suffer with daily headaches when they are on Warfarin?

Loopydaisy

•11 years ago

11 Replies

Recently Diagnosed and started Treatment

Hi Folk, I have been lurking here for a few months. Now delurking. Am a 62 year old man. Because of a whole raft of symptoms - gut problems, breathing...

Hi Folk, I have been lurking here for a few months. Now delurking. Am a 62 yea...

marco_mustard

•11 years ago

7 Replies

Exercise and INR stability

Hi, Has anyone else had problems with their INR fluctuating after the introduction of regular exercise?? I recently joined a gym to try and shed the lbs and...

Hi, Has anyone else had problems with their INR fluctuating after the introduct...

kateb81

•11 years ago

10 Replies

Professor Graham Hughes' March Blog 2014

March 2014 Dry and sunny at last. In the middle of planning this year’s ‘Ten Topics’ meeting. This annual two-day postgraduate meeting focuses in...

March 2014 Dry and sunny at last. In the middle of planning this year’s ‘Te...

MaryF

Administrator•11 years ago

10 Replies

Lifted from Hughes Syndrome Foundation charity web page. Some great news!

Good luck and thank you to our four fearless runners taking part in the Brighton Marathon this Sunday. Hope you all have a great day and run, run like the wind...

Good luck and thank you to our four fearless runners taking part in the Brighton...

MaryF

Administrator•11 years ago

2 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for April 2014

Does anyone ever get red blotches on their face? Last week I started getting these red patches and I thought it was dry skin?

Texas support Group

Does anyone have small red pin prick type marks on their body?

Rubbish day today

What level does your blood test results need to be to be classed as positive for APS?

For those of you in the UK last night's Panorama on BBC1 - Who's Paying Your Doctor?!

Going round in circles

Round up of news from Hughes Syndrome Foundation

London Hughes Support Group Meeting. April 2014.

I have been fighting for my inr level since January. ...it's no wonder below 1.0....on taking shots and pills....no energy..loosingweight

Positive outcome???

Does anyone know a true specialist for APS in Kansas City, Mo ?

Trying norethistat

First time using heparin

how to get my doctor to make referal to haemotologist

Hi the newsworthy Heartbleed Security flaw, some basic tips

Warfarin Question and what to do next, advice please

I've finally got the answers I have been after for 17 years. Saw a haemotologist and he is putting me on warfarin. I was so relieved to be

Meds

Oh! The joy of being a zebra!

My question is rather complex:

What else should I ask to be tested for?

Does anyone else have Granuloma annulare a benign skin condition. It is caused by a autoimmune reaction and thought it might be related.

Have found this and it is helpful for all warfarin users: http://www.warfarin.cz/downloads/nutescu.pdf

Does quinoa affect INR?

Hi all. Was wondering,does anyone else suffer with daily headaches when they are on Warfarin?

Recently Diagnosed and started Treatment

Exercise and INR stability

Professor Graham Hughes' March Blog 2014

Lifted from Hughes Syndrome Foundation charity web page. Some great news!

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