So after waiting for years for my GP to refer me, I have been seeing a haematologist for 6 mths, 3 positive test results later, I have now got a referral to a rheumatologist!! I'm happy with this.... I've also got a referral to cardio for an echo, and I've to keep going to haematology as I'm showing abnormality linked to PNH???... Googled it as I've never heard of it, don't know what to think, they are repeating the test.....
(again!!!.... 4th time, and really bad at giving blood... Not fun!!)
At this moment, I'm not worrying as the haematologist, seems not to concerned, as two of the tests where positive, the other not.... She says that it has to be consistent , and over 50%, each time, for them to be concerned.... I'm currently below 10%.
So mostly positive ( pardon the pun!!) news for me, im trying for glass half full today!