Lots has been going on with marathons being run, and money raised by good people, who of course do it for all the right reasons! These below are all posts written by Kate on the Hughes Syndrome Foundation Facebook page, as an admin on here I think it is vital to support the charity and also information share. Certainly 43 of my friends took the trouble to like that page and I know other members have done the same.
1. As a small charity we are only allocated one London marathon place every five years, and this is of those years. Thanks and good luck to Emily McLaughlin who is running this Sunday on our behalf. Emily's partner, Martin, has Hughes/APS and was lucky to survive multiple PEs. We hope you enjoy your day and achieve the marathon
Emily McLaughlin is fundraising on JustGiving for Hughes Syndrome Foundation
Help Emily raise money for this great cause.
So via HSF; 2.. She did it! Congratulations to Emily McLaughlin for completing the London marathon in 5 hours and 16 seconds. A fantastic achievement plus over £2K raised for our charity. Thank you and well done
3. Bravo and congratulations to Michael Wren for running (and finishing) the Brighton Marathon on our behalf at the weekend. He finished in fantastic time - only 3 hours 46 minutes and 30 seconds and raised over £1000. Here is Michael with his medal plus his Hughes syndrome/APS fan club Hope you all had a great day and thanks for doing this for us.
Many members on here including myself have at times sponsored events, and it is nice on this forum to see the pictures when we can, as this forum has been so supportive since its formation by helping members and also of course bringing in funds. Hopefully Kate can upload some of the pictures on here soon for us, as of course not everybody uses Facebook.
Other news,I am busy moving house soon, but after that time, I am going to collate all the patient stories, regarding Seronegative Hughes Syndrome. I have had great offers of help, of course I will not make any money out of the book, I shall be going to London for another meeting soon, and funds raised will be donated to a charity to help patients with Hughes Syndrome.