I could use some advice on medications for APS. When I was first diagnosed, I was started on baby aspirin. Then, lovenox and baby aspirin during my pregnancy. A couple months after my daughter was born, I was switched to warfarin. However, I did not respond well to it and was never able to get stable on it, despite watching my diet, taking at the same time every day, etc. Even on 12mg to 15mg, my INR was often only 1.6 or so. Then, when it did finally go up (which was rare), it went way up to around 5 or 6. During this time, I felt terrible. I was having all kinds of symptoms and just felt hopeless and awful. The doctor switched me to Clexane injections since the warfarin wasn't working and I felt much better then. I also changed my diet quite a bit which also helped. Well, now my doctor says he doesn't want me on clexane injections any longer because my hair is falling out (I have bald patches, which is pretty upsetting), which is apparently a known side effect, and he says that two years on it is already too long because of the risk of osteoporosis. He prescribed xerelto since warfarin wasn't working well. After doing some research...I'm afraid to take it. I haven't had a blood clot before, but I had three miscarriages and my antibodies are in the very very high positive range. I know that it isn't as much about the number of antibodies as whether you are positive for them or not, but even my hemotologist is concerned and at a loss for where my antibody numbers are at.
So, do any of you take xerelto? Any advice on that? Should I ask him to try warfarin again instead? Have any of you been on clexane/lovenox/enoxaparin injections for long term?
Thanks for your help.