I'm so frustrated I could scream! It's been months now and I have no answers!
It started in January, but like always, I ignored it for way too long. I have so many symptoms, it's hard to tell serious ones, from everyday aches and annoyances. Finally, my vision and concentration became so bad, I ran to my GP. I had also been battling daily migraines and nausea, but that's nothing out of the ordinary. I was diagnosed with depression and a UTI.
I was prescribed an antibiotic and Wellbutrin and scheduled for a six week follow up. After 6 weeks, I felt a little better, but not normal. My GP suggested an EEG and a follow up with my neurologist. I also stopped by my optometrist to get her opinion. She thought is was the Wellbutrin, but didn't think it was my eyes, due to my ability to clear my vision temporarily by blinking. My neuro couldn't see me for 3 months, so I scheduled with his nurse practitioner. That was a HUGE mistake! I have never been treated so poorly in my life!
She had no idea what Hughes Syndrome was and didn't even take the time to Google it! She let me know my EEG was normal and I should seek the care of an optometrist. When I told her I already had, she told me I needed a psychiatrist. I grabbed my purse and tried to storm out of her office, but as I was telling her off, she decided it would be a good idea to get the doctor.
The doc echoed her urging to see an optometrist (Does no one listen to me?) but also showed concern about a clot. He obviously wasn't THAT concerned as it took 2 weeks to get an MRI. In the meantime, I ran back to my GP to get off the Wellbutrin. He actually made me feel a little crazy at this visit too!
I am not crazy! I cannot see for more than a few seconds without getting blurry, I feel as though I'm in a daydream I can't get out of, my short term memory is non-existent and a good day is when my migraines stay at a dull roar. My MRI was Friday and I haven't heard anything of the results. I'm at a loss now for what to do. See the eye doc again? Find another specialist? Leave it alone and get used to my new, blurry lifestyle?
Anyone have anything similar?
Here's some quick stats:
-Diagnosed with APS in 2002 during IVF pregnancy
(Positive APS 2002 & 2005)
-Treated daily with 81mg aspirin