Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,378 members • 10,571 posts

All posts for May 2013

Has anyone else on here suspected water on the brain ?

Many years ago at St Thomas a consultant said "he had to get the water away from my Brain".......I was rather young then & my now diagnosed problems had not...

Many years ago at St Thomas a consultant said "he had to get the water away from...

Jillymo

•11 years ago

13 Replies

If You Find Difficulty Reading - READ THIS!

As you'll know, Hughes Syndrome shares quite a few symptoms with other conditions. While reading the posts on this site, I have my radar switched on for people...

As you'll know, Hughes Syndrome shares quite a few symptoms with other condition...

laserlight

•11 years ago

19 Replies

What causes momentary pain on the left side of my head when I shake it

I am quite healthy otherwise

mkpkumar

•11 years ago

6 Replies

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Anyone else dyslexic?

I've been wondering if what I'd always considered bad dyslexic days have actually got more to do with my blood, as both cause visual disturbance, confusion,...

I've been wondering if what I'd always considered bad dyslexic days have actuall...

Hidden

•11 years ago

6 Replies

Does warfarin have an effect on blood pressure

I have found that as my inr level increases I feel foggy headed, tired, and prone to dizziness. I believe the symptoms are not there when my inr is a bit...

I have found that as my inr level increases I feel foggy headed, tired, and pron...

overnighthearingloss

•11 years ago

14 Replies

inr?

hi all. on thursday i had my inr tested and it was at 2 so kept me on 5mg of warfrin and to be tested in 6 weeks time. whot do think? is it long untill...

hi all. on thursday i had my inr tested and it was at 2 so kept me on 5mg of war...

chapman

•11 years ago

11 Replies

Problem with reading

When I had my stroke in 1998 I struggled to learn to read again. It is not perfect but I can still read most books I want to. Problem started again last...

When I had my stroke in 1998 I struggled to learn to read again. It is not perf...

panda60

•11 years ago

23 Replies

A Warning Tale.

September last year my husband had to have surgery. He was told to stop his warfarin 5 days before hand. Before surgery he didn't have a Rhumatologist. He...

September last year my husband had to have surgery. He was told to stop his war...

Tiggercat

•11 years ago

22 Replies

My first official INR after starting Coumadin.........

My INR was 1. 7 , So my dose was increased by 1 mg ,Also had a nurse practitioner ,give more information about foods, vitamins and such. Was told...

My INR was 1. 7 , So my dose was increased by 1 mg ,Also had a nurse practiti...

tchance11

•11 years ago

2 Replies

my INR was slightly high and my PCP increased my Coumadin dose almost double. I am confused; is this normal?

saralee

•11 years ago

3 Replies

Embryo Transfer (IVF) Tommorrow with Hughes - Advice Needed re Asprin

Hello Peeps After sadly losing our little one at 4 months pregnant last year I was diagnosed with Hughes Syndrome. Due to male infertility factor we are...

Hello Peeps After sadly losing our little one at 4 months pregnant last year ...

fussyfoodie

•11 years ago

7 Replies

Periods are draining.

Does anyone else feel more drained than normal when having a period? I am on again, I have had a ten break between then, I had the coil fitted two months...

Does anyone else feel more drained than normal when having a period? I am on a...

KarenOR

•11 years ago

14 Replies

Pregnant and lupus anticoagulant positive need advise please ??

Hi, I am currently 5 weeks pregnant and suffered recurrent miscarriages last year when they finally tested me I have tested positive for lupus anticoagulant...

Hi, I am currently 5 weeks pregnant and suffered recurrent miscarriages last yea...

lisarig

•11 years ago

12 Replies

What do others consider amounts to a flare?

This is an odd question I know. I have lived with fatigue, pain, no stamina, headaches etc all my life and I'm 51 now. Trouble is I don't know what normal is....

This is an odd question I know. I have lived with fatigue, pain, no stamina, he...

Jade

•11 years ago

7 Replies

A blog which I wrote, copied from Thyroid UK's patient forum: Thyroid UK, attended our Patient Day at St Thomas' last Wednesday!

Community blog Thyroid UK Another useful Hughes Syndrome Patient's Day - with the useful attendance of Lyn Mynott from TUK Last...

Community blog Thyroid UK Another useful Hughes Syndrome Patient's Day...

MaryF

Administrator•11 years ago

2 Replies

Good news about DLA !

I received a letter today about DLA saying that I had been awarded higher mobility rate and middle rate care for 2 years initially. I'm over the moon about...

I received a letter today about DLA saying that I had been awarded higher mobili...

janekins

•11 years ago

12 Replies

meeting

hi everyone .whot was the hughes meeting like? is there going to be one next year? thanks.stacey

hi everyone .whot was the hughes meeting like? is there going to be one next yea...

chapman

•11 years ago

10 Replies

On a lighter note

Please if you can, post me your Sainsbury school vouchers, I am collecting for the school room inside Ipswich Hospital, they don't get many - please help if...

Please if you can, post me your Sainsbury school vouchers, I am collecting for t...

MaryF

Administrator•11 years ago

5 Replies

I went from being excited because I had a diagnosis & a treatment , to totally depressed and frustrated.

I feel like I have no help with the doctors, so I am reaching out to anyone for help. Prof. Khasmashta dx me with Sero-negative Hughes syndrome. I started...

I feel like I have no help with the doctors, so I am reaching out to anyone for ...

designer16

•11 years ago

2 Replies

Does Plaquenil really help Hughes Syndrome or APS? (not lupus anticoagulant but high anticardialipin)

My new rheumatologist says I may be able to stop the Plaquenil because she isn't sure it actually will help my APS. I have heard, and read, that it does help...

My new rheumatologist says I may be able to stop the Plaquenil because she isn't...

heatherdwtt

•11 years ago

6 Replies

Is Livedo exclusive to Hughes?

I've just read one of Prof Hughes blogs in which he says one of the 'telltale' signs is livedo. Does anyone know if this is exclusive to aps or can it appear...

I've just read one of Prof Hughes blogs in which he says one of the 'telltale' s...

PepperT

•11 years ago

6 Replies

Always ill

In the last year I seem to catch colds and cheat infections so much more often then normal. I always seem to be ill. I get better then the dizzy comes back...

In the last year I seem to catch colds and cheat infections so much more often t...

Charli84

•11 years ago

8 Replies

Warfarin: What is a 'safe' amount?

My husbands INR should be 2.5. He is a VERY active 77yo. He is building a single seat car, does field archery (4/5 miles in woodland, while shooting an English...

My husbands INR should be 2.5. He is a VERY active 77yo. He is building a single...

tipi

•11 years ago

9 Replies

What might I expect to see on Coumadin started today, how long will it be before I may see improvement ?

Anyone know how much a coagcheck XS costs? My insurance Will pay 80 percent.

tchance11

•11 years ago

4 Replies

Tuesday appointment Update

Hemotologist is great. He actually listens to you, and asks questions that are relevant, wanting to know more about how I felt. Then he said I would get a...

Hemotologist is great. He actually listens to you, and asks questions that are ...

tchance11

•11 years ago

1 Reply

WHY MY FINGERS FEELING THIGH

SAMETIME

•11 years ago

4 Replies

Is peripheral arterial disease a result of lupus anticoagulant, or vice versa? Thank you.

cmars

•11 years ago

1 Reply

Could somebody please ask a question for me tomorrow?

When I saw the Prof in April he suggested a 3 days a month course of steroids to help me at the premenstral part of my now difficult cycle as I am now 51. The...

When I saw the Prof in April he suggested a 3 days a month course of steroids to...

Jade

•11 years ago

2 Replies

Anyone suffered with forehead muscle spasms?

I woke up on Saturday experiencing these muscle spasms in my forehead, sort of above each eyebrow area coming every few minutes. Not really painful but very...

I woke up on Saturday experiencing these muscle spasms in my forehead, sort of a...

BobbieAnne

•11 years ago

1 Reply

AntiCoagulation Europe needs your help with our major new survey

We need your help with our major new survey Please help us by completing our major new survey on peoples experience of being diagnosed with a condition...

We need your help with our major new survey Please help us by completing our...

warfarin1

•11 years ago

29 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for May 2013

Has anyone else on here suspected water on the brain ?

If You Find Difficulty Reading - READ THIS!

What causes momentary pain on the left side of my head when I shake it

Anyone else dyslexic?

Does warfarin have an effect on blood pressure

inr?

Problem with reading

A Warning Tale.

My first official INR after starting Coumadin.........

my INR was slightly high and my PCP increased my Coumadin dose almost double. I am confused; is this normal?

Embryo Transfer (IVF) Tommorrow with Hughes - Advice Needed re Asprin

Periods are draining.

Pregnant and lupus anticoagulant positive need advise please ??

What do others consider amounts to a flare?

A blog which I wrote, copied from Thyroid UK's patient forum: Thyroid UK, attended our Patient Day at St Thomas' last Wednesday!

Good news about DLA !

meeting

On a lighter note

I went from being excited because I had a diagnosis & a treatment , to totally depressed and frustrated.

Does Plaquenil really help Hughes Syndrome or APS? (not lupus anticoagulant but high anticardialipin)

Is Livedo exclusive to Hughes?

Always ill

Warfarin: What is a 'safe' amount?

What might I expect to see on Coumadin started today, how long will it be before I may see improvement ?

Tuesday appointment Update

WHY MY FINGERS FEELING THIGH

Is peripheral arterial disease a result of lupus anticoagulant, or vice versa? Thank you.

Could somebody please ask a question for me tomorrow?

Anyone suffered with forehead muscle spasms?

AntiCoagulation Europe needs your help with our major new survey

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