Am I supposed to have other condition... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Am I supposed to have other conditions too?

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Hi again, reading the poll it would imply that Hughes doesn't occur on its own very often. I've just been diagnosed and on the whole I feel ok. I work full time and have a packed agenda. Is it likely I'll get another auto immune condition? I've got really bad anxiety over many things mainly down to losing twins last year because of APS. My second cousin has APS, has had it for over 15 years and he's fine, he leads a normal life and rides horses for a living. Am I supposed to feel really bad? Will it get worse?

6 Replies
MaryF profile image
MaryFAdministrator

Hi there, you may get nothing else and be ok... and better you have the diagnosis. Best wishes to you. Mary F X

Tiggercat profile image
Tiggercat

HI catesykes

My husband has Primary APS and other than "Sticky Blood" he has no other symptoms. He is on warfarin.

If you are on warfarin just be careful if you have to stop it for some reason, that is when you will have problems. If you are told to stop it and let your INR drop below 2, talk to your specialist or Dr about "bridging".

I have 2 female friends with APS and they only have issues when pregnant, otherwise they lead perfectly normal lives.

Thanks so much for the reassuring responses. It really has been a learning curve in more ways than one! I'm in aspirin and heparin at present as in early stages of pregnancy. I don't know yet what my long term treatment will be as I'm yet to see a specialist. Cate x

MaryF profile image
MaryFAdministrator in reply to

Please let us know how things are, and fingers crossed for you! Mary F x

laserlight profile image
laserlight

Hi Cate

I'm sorry to hear you lost twins last year; what a blow that was.

It's good you found the above comments informative and reassuring. Congratulations on being pregnant again! This time, you've got your APS diagnosis which is half the battle. With correct care you should expect a healthy baby at full term, so enjoy your pregancy and talk to your baby with zero anxiety. He or she can hear you. Good luck! John.

AngieF profile image
AngieF

HI catesykes,

I've been diagnosed fairly recently, and I don't have any other symptoms, so, I think its fine to feel ok!

Hopefully it stays that way for us.

Angie x

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