Well since my first appointment with Karen Breen things have not improved she feel there is an underlying problem other than APS she Is querying vasculitis, epilepsy or a demylinating disorder . Yesterday I was told i needed to be certified partially sighted and would never drive again , and I'm now virtually deaf .
APS has taken a lot of my function including my left leg but I'm 31 have a young family and now the fatigue is robbing me of my time with them , I cannot sit down without falling asleep nd the brain fog and memory problems are making life so difficult. Plaqenil is not helping and iron and multivitamins have made no difference I'm still having episodes of TIA and collapse even with an INR of 4 and aspirin .
Has anyone got any ideas on how to bear the fatigue all suggestions welcome