Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

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All posts for February 2013

Article of successful twin pregnancy

http://www.dailymail.co.uk/femail/article-2280997/Mothers-18lb-twins-Britains-heaviest-sets-Sara-Chiad-Hasland-Derbyshire.html

http://www.dailymail.co.uk/femail/article-2280997/Mothers-18lb-twins-Britains-he...

MJLS

•11 years ago

3 Replies

At last self dosing and testing

Finally after months of trying to get my doctor on side! I have started to self monitor and dose myself with warfarin. I don't have to go back to my doctors...

Finally after months of trying to get my doctor on side! I have started to self ...

MJLS

•11 years ago

7 Replies

Is 325mg Aspirin enough?

Hello everyone. I was diagnosed with APS last year and was put on 81mg Aspirin daily. About 2 months ago my doctor increased it to 325mg. I have aches and...

Hello everyone. I was diagnosed with APS last year and was put on 81mg Aspirin d...

aid1117

•11 years ago

7 Replies

Want to take advantage of all our features? Just log in!

hiya, does anyone know why APS isn't under the any of the Disability listings but Lupus is, it seems like APS isn't recognized as important.

sweett

•11 years ago

2 Replies

What's happening next week?

Can you help me, I have a hospital appt next week Wednesday but I am sure that I have read that something is happening on Tuesday 26th in the evening at the...

Can you help me, I have a hospital appt next week Wednesday but I am sure that I...

BrownChocolate

•11 years ago

3 Replies

acenoumarol (Nicoumalone)

Has anyone been dprescribed this? Was told to try incase warfarin gave me extreme coldness - would be truly grateful

Has anyone been dprescribed this? Was told to try incase warfarin gave me extre...

daisy11

•11 years ago

5 Replies

What should I ask Prof K tomorrow?

Having been summarily diagnosed and discharged by St Thomas's, I'm going to see Prof K at London Bridge tomorrow. I want to ask him whether I'm on appropriate...

Having been summarily diagnosed and discharged by St Thomas's, I'm going to see ...

Paleosooze

•11 years ago

3 Replies

jst diagnosed in shock HELP!!!!

hi all, i was seen by prof hughes lst wed and he finally rediagnosed me with aps after 8 yrs told i had ms. my INR is 0.8 and the prof says he wants me to...

hi all, i was seen by prof hughes lst wed and he finally rediagnosed me with aps...

shirleygirl

•11 years ago

8 Replies

Total meltdown

I have gone into total meltdown. I can remember vaguely how I felt last summer when I may or may not have had a TIA (all the symptoms but nothing showed up in...

I have gone into total meltdown. I can remember vaguely how I felt last summer ...

panda60

•11 years ago

7 Replies

Domestic help?

Does anyone know if we can get free domestic help from social services (or whoever)? I have my own house and work part-time from home. I have APS and...

Does anyone know if we can get free domestic help from social services (or whoev...

Coppernob

•11 years ago

7 Replies

Has anyone in the USA been treated for Hughes with a Seronegative blood

I tested positive about 14 yrs ago, now my blood test are normal. I just saw the hematologist in kaiser northern California USA. I had a pulmonary embolisms...

I tested positive about 14 yrs ago, now my blood test are normal. I just saw the...

designer16

•11 years ago

5 Replies

Warfarin

Hi Everyone, I am new at this so please bare with me. I have been on warfarin since last summer. I had a stable INR (between 2-3) for a couple months & now...

Hi Everyone, I am new at this so please bare with me. I have been on warfarin ...

Tinkyb

•11 years ago

32 Replies

is cataract surgery okay? Husband has had numerous clotting and bleeding events. He wants cataract surgery. What should I consider?

Rhodo

•11 years ago

6 Replies

Nose bleeds

I would be interested in people's experiences of nose bleeds when on warfarin.I was on clexane for 9 months without a single nose bleed but since switching to...

I would be interested in people's experiences of nose bleeds when on warfarin.I ...

StevePT

•11 years ago

3 Replies

driving licence

Evening every one, hope every body ok, just a quick one, has any one been told to give up driving as a result of aps or dissability caused by aps , i did ring...

Evening every one, hope every body ok, just a quick one, has any one been told ...

daftdog

•11 years ago

8 Replies

Fragmin and brain bleeds

Hi all im currently 7 months pregnant and on fragmin I've recently started getting bad headaches and I've been worrying about brain bleeds from the fragmin I...

Hi all im currently 7 months pregnant and on fragmin I've recently started getti...

Moonbug

•11 years ago

4 Replies

My experience with Xarelto after Warfarin...

Just wanted to share that I have been on Xarelto for about 3 weeks, and either I'm having a big Lupus flare or most of my APLS symptoms have returned. I am...

Just wanted to share that I have been on Xarelto for about 3 weeks, and either I...

iwantsimple

•11 years ago

6 Replies

Splinter Hemorrhages

Hi, I keep getting a lot of splinter hemorrhages, at the moment i've got 9. Does anyone know anything about them? Is this part of APS? Thanks

Hi, I keep getting a lot of splinter hemorrhages, at the moment i've got 9. Does...

Dumpypug

•11 years ago

8 Replies

Memory improvement on warfarin

I was only diagnosed with Hughes syndrome a couple of months ago by a Stroke Consultant and have been on warfarin for about 5 weeks. INR going up but very...

I was only diagnosed with Hughes syndrome a couple of months ago by a Stroke Con...

Elaine77c

•11 years ago

13 Replies

Does anyone's symptoms get worse

Does anyone body get muscle cramps or spasms in the evening and at night when you sleep? What have you done to help it? Designer16

Does anyone body get muscle cramps or spasms in the evening and at night when yo...

designer16

•11 years ago

6 Replies

Does anyone's symptoms get worse

Does anyone body get muscle cramps or spasms in the evening and at night when you sleep? What have you done to help it? Designer16

Does anyone body get muscle cramps or spasms in the evening and at night when yo...

designer16

•11 years ago

1 Reply

Can feeling nausea constant and bloated be signs of Hughes?

I have felt so unwell for weeks and getting very worried, what signs should I be contacting the consultant about?

I have felt so unwell for weeks and getting very worried, what signs should I be...

Sonia21145

•11 years ago

4 Replies

INR question

Hi everyone. Im in the US and my lab tests never exactly state the ratio.my DRVVT is 27 (range 37-50). Anticardiolipin IgM 14.5 (range0-11). IgG 22.3...

Hi everyone. Im in the US and my lab tests never exactly state the ratio.my DRVV...

lovemyheart

•11 years ago

7 Replies

Is someone squeezing my brain?

Does anyone else get a feeling that their brain is being squeezed. It is more irritating than painful, kind of a sharpish squeezing feeling. Sometimes it is...

Does anyone else get a feeling that their brain is being squeezed. It is more ir...

iwantsimple

•11 years ago

11 Replies

Swelling/lumps in left side of chest/ribcage....

I have suffered from strange chest swellings & pain for several years now...started almost 7 years ago. Only on the left side of my rib cage. I have seen every...

I have suffered from strange chest swellings & pain for several years now...star...

lisakay

•11 years ago

13 Replies

I have weakess in my left leg. Anyone else have this problem?

jean48

•11 years ago

3 Replies

I get horrible electrical charges through my head. I think I may faint. Anyone had these or knows the cause?

pluto5

•11 years ago

8 Replies

Can active sporting or diets influence symptons of APS?

Hi there Just diagnosed with APS. Was wondering if, apart from medication, other things could improve my life, like sports or diets. Does anyone of you talked...

Hi there Just diagnosed with APS. Was wondering if, apart from medication, othe...

Flyingdutchie

•11 years ago

5 Replies

How to manage multiple specialists?

My doctor has referred me to a rheumatologist, heomotoligist and obstrician. The proverb "too many cooks spoil the broth" springs to mind...how do people...

My doctor has referred me to a rheumatologist, heomotoligist and obstrician. The...

Maybells

•11 years ago

4 Replies

Newbie

Hello im new to this community am with the lupus community but signed with this one i was dianosed last year at 17 am now 18 came here for support and insight...

Hello im new to this community am with the lupus community but signed with this ...

Danielle2419

•11 years ago

2 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for February 2013

Article of successful twin pregnancy

At last self dosing and testing

Is 325mg Aspirin enough?

hiya, does anyone know why APS isn't under the any of the Disability listings but Lupus is, it seems like APS isn't recognized as important.

What's happening next week?

acenoumarol (Nicoumalone)

What should I ask Prof K tomorrow?

jst diagnosed in shock HELP!!!!

Total meltdown

Domestic help?

Has anyone in the USA been treated for Hughes with a Seronegative blood

Warfarin

is cataract surgery okay? Husband has had numerous clotting and bleeding events. He wants cataract surgery. What should I consider?

Nose bleeds

driving licence

Fragmin and brain bleeds

My experience with Xarelto after Warfarin...

Splinter Hemorrhages

Memory improvement on warfarin

Does anyone's symptoms get worse

Does anyone's symptoms get worse

Can feeling nausea constant and bloated be signs of Hughes?

INR question

Is someone squeezing my brain?

Swelling/lumps in left side of chest/ribcage....

I have weakess in my left leg. Anyone else have this problem?

I get horrible electrical charges through my head. I think I may faint. Anyone had these or knows the cause?

Can active sporting or diets influence symptons of APS?

How to manage multiple specialists?

Newbie

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