Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for February 2013

DWP Tribunal

Some of you may recall my one and a half year long appeal with the DWP. I am very pleased to inform you all that I had my tribunal hearing on Wednesday. The...

Some of you may recall my one and a half year long appeal with the DWP. I am ver...

Rhian21

•11 years ago

16 Replies

My range is 2.5 to 3.5 . Last 2 test were 3.48 and 3.3 .Should I reduce dosage presently on 14mg a week

wilfj

•11 years ago

7 Replies

Hi all hope you're all doing ok:

Hi, I've not been around much. Lots going on both home and work. Work very busy and constantly having to prove i can do my job. Plus side consultants t work...

Hi, I've not been around much. Lots going on both home and work. Work very busy...

bevers1

•11 years ago

1 Reply

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Joint hypermobility syndrome and soft tissue rheumatism?

After 4 years of back pain(swelling/fluid on sacral joint) and multiple times in hospital i have been diagnosed with joint hypermobility syndrome and soft...

After 4 years of back pain(swelling/fluid on sacral joint) and multiple times in...

beckyb

•11 years ago

10 Replies

i have many things wrong with me but i don't know if i have Hughes syndrome but it is in my family

I have had a Dvt also pulmonary Embolism miscarriages migraines zigzags a lot, extra cold circulation problems in my feet and legs, pain in my knees and hips...

I have had a Dvt also pulmonary Embolism miscarriages migraines zigzags a lot, ...

lizzybabe

•11 years ago

8 Replies

First Rheumy Appt any ides what to expect?

Hi all, its been a while since I last asked a question, so just to give you an update, after a rubbish first appointment with my haematologist, I have had a...

Hi all, its been a while since I last asked a question, so just to give you an u...

dragtalav

•11 years ago

5 Replies

when were you diagnosed of LUPUS??

hello , today , during my medical apointment, I was told ANA + for my first time since I was diagnosed APS (almost 2 years). I have common sympthoms with...

hello , today , during my medical apointment, I was told ANA + for my first ti...

swirl

•11 years ago

4 Replies

I'm having off and on sharp pain on the top left side of my head and it is very piercing and it comes and goes every 5, or 20 min later.

maximillion

•11 years ago

19 Replies

Aches and pains?

I've always suffered with various aches, sometimes they're sharp sudden pains lasting a few seconds or continuous dull aches. I'm getting more and more of the...

I've always suffered with various aches, sometimes they're sharp sudden pains la...

Maybells

•11 years ago

8 Replies

APS moments....

This could well be APS moments for me. Well aside from the last bit about the viagra that is! http://youtu.be/9nndS22Qda0 [Admin inserted live...

This could well be APS moments for me. Well aside from the last bit about the vi...

travelnut

•11 years ago

3 Replies

snow bound here in New Hampshire U.S.A.

Close to 2 ft, snow on ground now-- gotta get out and snow blow again-- much trouble with I.N.R 's doc.s watching me close another trip to E.R. fri day my...

Close to 2 ft, snow on ground now-- gotta get out and snow blow again-- much tro...

jetjetjet

•11 years ago

9 Replies

Helping change the culture out there

With the scandal of Staffordshire back in the news again, and the knock on effect, also this not being an isolated incident. I write regularly and widely...

With the scandal of Staffordshire back in the news again, and the knock on effec...

MaryF

Administrator•11 years ago

3 Replies

aps specialists

morning all hope everyone ok ,does any one have a name of an aps consultant and a hospital name were they work as my doctor did not know they existed he...

morning all hope everyone ok ,does any one have a name of an aps consultant and ...

daftdog

•11 years ago

5 Replies

dental work

Hello, well last night one of my teeth broke and it is very sensitive to say the least. Any advice when speaking to dentist. When I needed some work carried...

Hello, well last night one of my teeth broke and it is very sensitive to say the...

daisy11

•11 years ago

13 Replies

New article on The Telegraph

http://www.telegraph.co.uk/health/healthnews/9856694/Drug-pumped-straight-into-brain-gives-hope-to-stroke-patients.html Mary F

http://www.telegraph.co.uk/health/healthnews/9856694/Drug-pumped-straight-into-b...

MaryF

Administrator•11 years ago

2 Replies

Plaquenil, what to expect for the first time taking it

My wife will be taking Plaquenil for the first time, is there any things she should expect in taking it in starting to take the medication?

My wife will be taking Plaquenil for the first time, is there any things she sho...

Skyllark

•11 years ago

5 Replies

hughes syndrome and angina

Hi every one, i have just spent a couple of days in hospital after having chest pain and have now been diagnosed with angina, high blood presure and colestral...

Hi every one, i have just spent a couple of days in hospital after having chest ...

kimmi9

•11 years ago

5 Replies

Vitamin D and Systemic Lupus.......A useful paper, poached from another forum

People with autoimmune are now more in the know about checking vitamin D levels and this paper is specifically about Vitamin D and Systemic Lupus, an...

People with autoimmune are now more in the know about checking vitamin D levels ...

MaryF

Administrator•11 years ago

5 Replies

So much for the new tablets!

Started a different tablet for blood pressure on Tuesday and third day in feel tired and sick with a splitting headache. Will have to phone my long suffering...

Started a different tablet for blood pressure on Tuesday and third day in feel t...

panda60

•11 years ago

1 Reply

getting stabbing pains at back right side of head, have had them for 3 days now on and off, some more severe than others,

but have it longer this time, was wondering if coldness has anything to do with it, as was in a cold area on sunday and it started that night? take painkillers...

but have it longer this time, was wondering if coldness has anything to do with ...

Blondediver

•11 years ago

9 Replies

Just learned of Hughes Syndrome. Have had 2 miscarrieages, 1st at 18 wks when my waters broke & 2nd at 8 wks. could i b a sufferer?

chermilano1

•11 years ago

12 Replies

Been to see my GP today

Haven't posted much on here recently as I've been too exhausted to think straight. Went to see my lovely GP today to ask about my thyroid but he doesn't think...

Haven't posted much on here recently as I've been too exhausted to think straigh...

panda60

•11 years ago

6 Replies

Getting others to understand

Outwardly you look fine, inside your body is fighting a little battle, getting someone to understand when your ill your ill your not trying to advoid work,...

Outwardly you look fine, inside your body is fighting a little battle, getting s...

KarenOR

•11 years ago

18 Replies

I need to find PUBMED research on APL antibody "trigger events." This term is obviously not a medical one. Any suggestions for me to try?

I had APL antibodies triggered during an eye surgery by an anesthesiologist who left my feet hang way over the edge of the operating table. I am trying to...

I had APL antibodies triggered during an eye surgery by an anesthesiologist who ...

activefarmer

•11 years ago

3 Replies

Has anyone else had eye problems?

I have recently been registered severely sight impaired (blind)after having a TIA causing (Inflammetry optic neuropathy)The only treatment the ophthalmologist...

I have recently been registered severely sight impaired (blind)after having a TI...

popshaw21

•11 years ago

12 Replies

Chest pains

People who have a PE does anyone still get chest pains if so what do you do? Xx

noodlesrita123

•11 years ago

13 Replies

Bach Rescue Remedy

Does anybody know whether Bach Rescue Remedy is ok to use with phenindione without it effecting your inr too much. Got to have root canal work done and...

Does anybody know whether Bach Rescue Remedy is ok to use with phenindione witho...

tiredmum

•11 years ago

2 Replies

Is anyone taking Xarelto for APLS/Hughes?

My doctor just switched me from Warfarin to Xarelto because we just couldn't keep my INR stable. Is anyone else taking Xarelto?

My doctor just switched me from Warfarin to Xarelto because we just couldn't kee...

iwantsimple

•11 years ago

13 Replies

An aps newbie: Aps patients and their relationships with medical professionals

I've recently been diagnosed with primary aps. The diagnosis is not a surprise - here's a brief overview of events that have led to it: - 5...

I've recently been diagnosed with primary aps. The diagnosis is not a surprise -...

Maybells

•11 years ago

7 Replies

Possible Hughes?

Hi all, Today I received blood test results back that put my IGg antibodies at 218 instead of the normal 0-10 range. This is the second high result I've...

Hi all, Today I received blood test results back that put my IGg antibodies ...

Fairypies

•11 years ago

8 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for February 2013

DWP Tribunal

My range is 2.5 to 3.5 . Last 2 test were 3.48 and 3.3 .Should I reduce dosage presently on 14mg a week

Hi all hope you're all doing ok:

Joint hypermobility syndrome and soft tissue rheumatism?

i have many things wrong with me but i don't know if i have Hughes syndrome but it is in my family

First Rheumy Appt any ides what to expect?

when were you diagnosed of LUPUS??

I'm having off and on sharp pain on the top left side of my head and it is very piercing and it comes and goes every 5, or 20 min later.

Aches and pains?

APS moments....

snow bound here in New Hampshire U.S.A.

Helping change the culture out there

aps specialists

dental work

New article on The Telegraph

Plaquenil, what to expect for the first time taking it

hughes syndrome and angina

Vitamin D and Systemic Lupus.......A useful paper, poached from another forum

So much for the new tablets!

getting stabbing pains at back right side of head, have had them for 3 days now on and off, some more severe than others,

Just learned of Hughes Syndrome. Have had 2 miscarrieages, 1st at 18 wks when my waters broke & 2nd at 8 wks. could i b a sufferer?

Been to see my GP today

Getting others to understand

I need to find PUBMED research on APL antibody "trigger events." This term is obviously not a medical one. Any suggestions for me to try?

Has anyone else had eye problems?

Chest pains

Bach Rescue Remedy

Is anyone taking Xarelto for APLS/Hughes?

An aps newbie: Aps patients and their relationships with medical professionals

Possible Hughes?

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