At last self dosing and testing - Hughes Syndrome A...

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At last self dosing and testing

MJLS profile image
MJLS
7 Replies

Finally after months of trying to get my doctor on side! I have started to self monitor and dose myself with warfarin. I don't have to go back to my doctors unless there is something wrong with me like a normal person! or my INR becomes an issue. So happy, feel like I can finally get on with life and start a new job in peace.

Thank you to everyone for your support on this.

MJ x

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MJLS profile image
MJLS
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7 Replies
MJLS profile image
MJLS

Yes I'm going back in 6 months just to test and check all is well but that's not even a 5 min appointment. So glad that I can get on with life.

MJ x

Jade profile image
Jade

Well done its great that your GP is on your side.

Mine are backing me but the hospital clinic does not so I have never had mine checked with a venous draw in 9 years.

MaryF profile image
MaryFAdministrator

Hi there, great progress, pleased for you, in your quest to get this sorted, best wishes. Mary F x

Tinkyb profile image
Tinkyb

That is great news. My doctor just prescribed me a home testing unit too. What a relief

lisakay profile image
lisakay

Slighly jealous over here in the USA...they look at me like I am nutty when I bring up the matter. I recently read on the APS site that they do not recommend home monitoring machines for APS patients. Time for me to move to the U.K. :)

lisakay profile image
lisakay

In addidition to my above comment..........Something about the test strips will cause a false-high reading. Anyone know anything about this...again, I am in the USA. :(

tipi profile image
tipi

My husband is also now self testing. Not having to wait for a nurse at our surgery to have a spare spot ('we will work around your life'...I don't think so!) is a big relief. It also means he can check once a week instead of the anything up to 10 weeks, especially as his INR is never where it should be.

Good luck

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