Anyone have restless leg syndrome with APS

[xxtracyxx]

I have been diagnosed with APS and am trying to connect the dots on a lot of symptoms so wondered if anyone else suffers with heavy twitchy restless leg syndrome?

[MaryF Administrator]

Yes extremely bad, I have five overlapping conditions, but since I started taking magnesium, unless very ill with nasty virus, this has virtually gone! Do check with GP or consultant first though. You can either buy it in pill form, or a spray for the skin! Mary F

[jetjetjet]

hi i have had problems with this-muscle spasms in legs, arms ,back etc. i just went thru an e.m.g./n.v.s.- just last week - also numbness and tingling and pain in feet- i will be seeing my dc on weds the 22 nd [ rheumy ] they also did a complete spinal set of x- rays that didnt show enough to account for the symtoms. anythimg i find out i would be glad to share. are you from the states? anything else you can think of let me know---------------- jet

[xxtracyxx in reply to jetjetjet]

Im UK but wanted to know if this was common amongst other APS sufferers I also have swollen ankles more recently

[Sue2803]

I too suffer with restless legs and the twitching, jerking, especially at night or when relaxing in the evening. My doc prescribed amitriptilline (spelling), this has helped a little. Might be worth a try.

[lenore77 in reply to Sue2803]

I'm experiencing more pain in my legs. I've had known APS for about 12 years, diagnosed after DVT. I can't stand for any length of time without weakness and pain, and it's really frustrating.

[HollyHeski Administrator in reply to lenore77]

Hi and welcome, I see you have just joined.You have replied here to a very old post, can I suggest you post your own question to enable you to get more in to date responses?

We are not medically advisors on here but share and support our issues with informed experience and hopefully a friendly face.

Your pain in your legs sound horrible, and more than frustrating. Have you discussed with your GP or specialist?

Look forward to discussing more.

Again welcome.

[emmaj]

i get them too - i had to get diazepam in the end just to sort it out, the twitching and jerking woke me up and the restless legs were horrendous!

[tassie]

Yes i do mostly at night but not every night.

[paddyandlin]

Hi xxtracyxx,

Welcome to the group you will find a wealth of support and information here. Yes i do get a twitching in my left leg drives me mad, you may also want to look at the HSF website it has a lot of information on it and also your welcome to ask as many questions as you like we always happy to help hughes-syndrome.org

Paddy

[tassie]

Sometimes I find wearing the travel socks helps so might be worth a try. I'd actually forgotten that was why I have been wearing my travel socks a lot lately! Even have them on now ...stupid fuzzy head!

[tassie in reply to tassie]

fuzzy head is me...

[Gadgets]

YES.. I have this only in bed though...

[julie99]

I get this in my left leg, jumpy and jerky and, like many of you, only when lying down. I've found mine is removed by eating salt at the time it jumps-either a packet crisps or just several dabs of salt on my finger. I also find that if I have too much salt my pain patches itch ike mad!

[siveinvan]

I found this to unbearable; I later on linked it to peri menopause; once I started bio identical hormone replacement, the electric current zaps went away. I have a lot of friends who, around the age of 50 also experienced this.

[GirlfromTennessee]

Yes, My was diagnosed as having Chorea. This has a connection to APS. I take the drug ropinole it really helps!!!

[Wittycjt in reply to GirlfromTennessee]

Youve answered a very old post