Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,392 members • 10,588 posts

All posts for January 2012

Hughes Syndrome/APS.....what are the differences between these two?

My doctor has said mine is Hughes...not APS

Mystynzl

•13 years ago

14 Replies

Catastrophic Hughes!!

Hello everyone, Well after being diagnosed less than a year ago my doctor has just told me I now have catastrophic Hughes. During xmas I had heamaturia....

Hello everyone, Well after being diagnosed less than a year ago my doctor has j...

Mystynzl

•13 years ago

11 Replies

where do i go from here????

Hi all today i received my blood test results and both were negative. im not sure where to go from here. I have a spect scan within the next 8 weeks but...

Hi all today i received my blood test results and both were negative. im not ...

linda1scot

•13 years ago

14 Replies

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Can anyone feel blood clots moving in their body?

My husband has APS, diagnosed in 2007 when I walked in after he'd had a TIA, couldn't talk & was numb on one side. He had PE's & lost 1/3 of his lung. Since...

My husband has APS, diagnosed in 2007 when I walked in after he'd had a TIA, cou...

sbncmo

•13 years ago

42 Replies

Jerky movements

Does any one else get keky mo vements. I dont get them all the time but when they do come they stay for quite a while getting worse and worse until they...

Does any one else get keky mo vements. I dont get them all the time but when the...

margaretjo

•13 years ago

9 Replies

Has anyone ever had bladder symptoms attributed to APS?

Sometimes there is a trace of blood in my urine. I've been treated for cystitis in the past and I know I passed two stones about 10 years ago. I've heard of...

Sometimes there is a trace of blood in my urine. I've been treated for cystitis...

Eagle

•13 years ago

8 Replies

neurologists letter

I saw the neurologist last week and he has copied me in on hs letter to my GP and the rheummatologist. Sorry in advance if this is long winded he has...

I saw the neurologist last week and he has copied me in on hs letter to my GP an...

annie330

•13 years ago

8 Replies

what are INRs?

I had a stoke or TIA, after some blood tests the stoke consultant thinks I have Hughes syndrome and I have to see a neurologist and have another blood test to...

I had a stoke or TIA, after some blood tests the stoke consultant thinks I have ...

sharon58

•13 years ago

14 Replies

INR Rant

It's not often I get fed up or worried I am just not the sort, but lately I am really really fed up with my INR's yo yoing all over the place. They are...

It's not often I get fed up or worried I am just not the sort, but lately I am r...

judes

•13 years ago

13 Replies

Diagnosed with APS after stroke. Now have a rash when having a flare-up, not a lupus rash. Does anyone else have this?

MaryH

•13 years ago

9 Replies

AOL down & on hols.

Hi to all :D Sorry not been on here for a while :( AOL has been mucking us about & we have been off the internet & home phone since last Tuesday...

Hi to all :D Sorry not been on here for a while :( AOL has been mucking ...

Suzypawz

•13 years ago

11 Replies

ICE app........from Android market

Here is one for the smart phone owners out there I have found a great little app that carries all you information without having to worry about over coming the...

Here is one for the smart phone owners out there I have found a great little app...

ClareSteggles

•13 years ago

3 Replies

Physio experience/advice? plus post stroke brain question

Dear all Slowly starting to feel normal again after a whole term back at work..but am still really struggling with my left hand. My (dream-gorgeous) physio...

Dear all Slowly starting to feel normal again after a whole term back at work.....

Eliza_E

•13 years ago

8 Replies

Brag

Hi all Because of the transplant I have to have regular blood tests done at the renal transplant clinic in Guy's hospital. Guy's is only 20 minutes across...

Hi all Because of the transplant I have to have regular blood tests done at t...

Hidden

•13 years ago

4 Replies

Getting fit again ;-) and fighting the symptoms of auto immune conditions....3 stone to lose!!

With my new sports wear and hold in pants i met with a personal trainer today! My rheumy specialist nurse would not be impressed as she keeps saying pace...

With my new sports wear and hold in pants i met with a personal trainer today! M...

kathyD64

•13 years ago

11 Replies

16th may - national patients meeting

Hi i joined this forum in june and so have never attended any meetings before. Could someone kindly tell me about the meeting on the 16th or point me in the...

Hi i joined this forum in june and so have never attended any meetings before. C...

kathyD64

•13 years ago

6 Replies

A BIG Thank you

I would like to say thank you for setting up the health Unlock web site as it has been great idea as it has helped me (and others) with reading others blogs...

I would like to say thank you for setting up the health Unlock web site as it ha...

Stannington-lad

•13 years ago

6 Replies

has anybody in england heard from kristina

kristina left on last tuesday nite for her journey to start her adventure in england, i know she wont have any computer service for a while, so i was wondering...

kristina left on last tuesday nite for her journey to start her adventure in eng...

jetjetjet

•13 years ago

25 Replies

Thank you!

To read other peoples thoughts, feelings, symptoms, worries and feel genuine care has been such an eye opener. For once in my life I don't actually think I...

To read other peoples thoughts, feelings, symptoms, worries and feel genuine car...

Lesley_D

•13 years ago

8 Replies

Does anyone with APS follow a Gluten free diet? Or Paleo diet?

I don't but am considering, the Paleo route, as it appears it could have a positive effect on helping with the APS and the symptoms.

I don't but am considering, the Paleo route, as it appears it could have a posit...

Debs_Much

•13 years ago

6 Replies

Support for our Brighton marathon runners

Dear All I just wanted to let you know that both our marathon runners have set up their Just Giving. I do understand that a lot of people are not working...

Dear All I just wanted to let you know that both our marathon runners have se...

Hidden

•13 years ago

1 Reply

REGULAR MRI SCANS

Just wondering whether one has to have more than one scan a year? I had one done in April after having TIA (3 weeks later) only requested by Hept department...

Just wondering whether one has to have more than one scan a year? I had one don...

daisy11

•13 years ago

3 Replies

hi im a new member and wondered if anyone is from south wales...finding it very difficult to get a good rheummy whom understands aps...

natirish

•13 years ago

34 Replies

Does anyone know if APS is genetic? Should I get my sons tested?

I would really welcome your comments. Thanks Hoping you are all well Lesley

Lesley_D

•13 years ago

12 Replies

DRIVING WITH APS

Hello, I am just wondering how many APS patients are driving still. I need to get driving again, as I need to do something for myself. It was only having a...

Hello, I am just wondering how many APS patients are driving still. I need to g...

daisy11

•13 years ago

7 Replies

Anyone taking Plavix?

Does anyone take Plavix instead of Coumadin/Warfarin or LMWH? Have you had any issues with it?

Does anyone take Plavix instead of Coumadin/Warfarin or LMWH? Have you had any ...

Hidden

•13 years ago

3 Replies

antithyroid antibody

Hi when i was first dx with hughes my bloods also said i had antithyroid antibodies. My thyroid gland is said to be borderline but i wandered if it is part of...

Hi when i was first dx with hughes my bloods also said i had antithyroid antibod...

kathyD64

•13 years ago

5 Replies

INRS up and down, weekly tests since April!

Well I am just about fed up of having to attend the Haem every week, I know that they have to keep an eye on me, but I feel that nothing is in control here. I...

Well I am just about fed up of having to attend the Haem every week, I know that...

daisy11

•13 years ago

17 Replies

flying as an assisted passenger

May be going to Glasgow from Gatwick soon to see my 90yr old parents as mother is in hospital-better than last week when thought might have have to dash up...

May be going to Glasgow from Gatwick soon to see my 90yr old parents as mother i...

panda60

•13 years ago

7 Replies

Interesting news article about autoimmunity.....

I just spotted this article; it doesn't mention Hughes Syndrome or Lupus specifically, but does talk of autoimmunity in general: "An Irish mathematician has...

I just spotted this article; it doesn't mention Hughes Syndrome or Lupus specifi...

Izzchick

•13 years ago

3 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for January 2012

Hughes Syndrome/APS.....what are the differences between these two?

Catastrophic Hughes!!

where do i go from here????

Can anyone feel blood clots moving in their body?

Jerky movements

Has anyone ever had bladder symptoms attributed to APS?

neurologists letter

what are INRs?

INR Rant

Diagnosed with APS after stroke. Now have a rash when having a flare-up, not a lupus rash. Does anyone else have this?

AOL down & on hols.

ICE app........from Android market

Physio experience/advice? plus post stroke brain question

Brag

Getting fit again ;-) and fighting the symptoms of auto immune conditions....3 stone to lose!!

16th may - national patients meeting

A BIG Thank you

has anybody in england heard from kristina

Thank you!

Does anyone with APS follow a Gluten free diet? Or Paleo diet?

Support for our Brighton marathon runners

REGULAR MRI SCANS

hi im a new member and wondered if anyone is from south wales...finding it very difficult to get a good rheummy whom understands aps...

Does anyone know if APS is genetic? Should I get my sons tested?

DRIVING WITH APS

Anyone taking Plavix?

antithyroid antibody

INRS up and down, weekly tests since April!

flying as an assisted passenger

Interesting news article about autoimmunity.....

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