Sticky Blood-Hughes Syndrome Support
8,078 members8,319 posts


Hello, I am just wondering how many APS patients are driving still. I need to get driving again, as I need to do something for myself. It was only having a funny turn in GP surgery 4 years ago that my GP said she did not think I should drive. MY Neuro consultant said I could that was 3 years ago and I thought great, but my hubby a little concerned.

Look forward to hearing from you

7 Replies


I drive from time time when I don't feel tired or light headed.

Slowly I am getting better and driving more these past 12 months.


I'm still driving and GP and hospital consultants know I drive. If I don't feel good then I won't drive.


Following a stroke my license was suspended. 6 months post after theory testing and a 1 and a half hour on-road test the license was re-instated.

I have no problems with my driving.



Hii I drive, sometimes way too much, when working or should I say if and when I go back to work I will drive 600 + miles a week - my only issue is the fatigue.... I always put that down to long hours, but maybe not. Nobody so far has suggested I can't drive.

good luck if you start again



Hi there

I am still driving, but if I feel unwell I don't. I took the bull by the horns so to speak and rang up my insurance company. They were fine about it and just made a note. That was my only concern. It is not on the list of conditions l with the DVLA.

Go well!


I still drive and everyone knows it. I pay nothing extra premium wise. I was told not to drive a few years back, for a three months I think, by the stroke doctor after three TIAS in a day. I did NOT hand my driving licence back but did check with the Stroke doctor after the three months or whatever,if he thought I was no longer impaired, and then I wrote to the DVLC advising them of what had happened. They confirmed it was ok to drive if my condition did not worsen. I think it was three months I was off the road, may have been a month-but the circumstances, i.e. number of stokes/tias within a stated time frame obliged the doctor to advise/instruct me not to drive. I believe he would have had to advise the DVLC. But all that was down to the TIAs and not Hughes, even though it was the Hughes that led to the TIAs. If my drugs, which includes opiate derived pain killers, impaired my ability, then its like driving with excess alcohol i.e. when ability impaired.

Sorry, that's a long winded way of saying you should be ok but there might be times when you should not. There is advice on the DVLA website but it doesn't mention Hughes as such.


Thank you - cannot wait to drive


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