DRIVING WITH APS: Hello, I am just... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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DRIVING WITH APS

daisy11 profile image
7 Replies

Hello, I am just wondering how many APS patients are driving still. I need to get driving again, as I need to do something for myself. It was only having a funny turn in GP surgery 4 years ago that my GP said she did not think I should drive. MY Neuro consultant said I could that was 3 years ago and I thought great, but my hubby a little concerned.

Look forward to hearing from you

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daisy11
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7 Replies
Stannington-lad profile image
Stannington-lad

Hi

I drive from time time when I don't feel tired or light headed.

Slowly I am getting better and driving more these past 12 months.

annie330 profile image
annie330

I'm still driving and GP and hospital consultants know I drive. If I don't feel good then I won't drive.

lucky1 profile image
lucky1

Following a stroke my license was suspended. 6 months post after theory testing and a 1 and a half hour on-road test the license was re-instated.

I have no problems with my driving.

lucky1

Lesley_D profile image
Lesley_D

Hii I drive, sometimes way too much, when working or should I say if and when I go back to work I will drive 600 + miles a week - my only issue is the fatigue.... I always put that down to long hours, but maybe not. Nobody so far has suggested I can't drive.

good luck if you start again

Lesley

london-lass profile image
london-lass

Hi there

I am still driving, but if I feel unwell I don't. I took the bull by the horns so to speak and rang up my insurance company. They were fine about it and just made a note. That was my only concern. It is not on the list of conditions l with the DVLA.

Go well!

tim47 profile image
tim47

I still drive and everyone knows it. I pay nothing extra premium wise. I was told not to drive a few years back, for a three months I think, by the stroke doctor after three TIAS in a day. I did NOT hand my driving licence back but did check with the Stroke doctor after the three months or whatever,if he thought I was no longer impaired, and then I wrote to the DVLC advising them of what had happened. They confirmed it was ok to drive if my condition did not worsen. I think it was three months I was off the road, may have been a month-but the circumstances, i.e. number of stokes/tias within a stated time frame obliged the doctor to advise/instruct me not to drive. I believe he would have had to advise the DVLC. But all that was down to the TIAs and not Hughes, even though it was the Hughes that led to the TIAs. If my drugs, which includes opiate derived pain killers, impaired my ability, then its like driving with excess alcohol i.e. when ability impaired.

Sorry, that's a long winded way of saying you should be ok but there might be times when you should not. There is advice on the DVLA website but it doesn't mention Hughes as such.

daisy11 profile image
daisy11

Thank you - cannot wait to drive

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