My husband has APS, diagnosed in 2007 when I walked in after he'd had a TIA, couldn't talk & was numb on one side. He had PE's & lost 1/3 of his lung. Since then he has always felt clots go through his lungs, which are very painful, & has had more TIA's despite taking Warfarin. April 1, 2011, he felt one go thru his lungs, soon his right side was numb & he felt the clot go on to stop in his left forehead. Two weeks later, he started pouring blood from his nose. The ER doctors couldn't stop it & had raised his BP dangerously high, so he had to be pumped with vitamin K for 18 hours until an ENT could go in & cauterize it. The ENT said he had an aneurysm in his upper sinus caused by a blood clot. It was the exact spot my husband felt the clot stop. His blood count went from 18.5 to 10 in 12 hours.
Doctors keep insisting that he can't feel clots move, but we disagree. I'd like to know if anyone else feels clots move & has doctors telling them it isn't true.