Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for January 2012

Does your INR level affect the way you feel?

I have had APLS for several years, picked up after several miscarriages so was on aspirin and heparin for my last pregnancy and for 6 weeks after. After that...

I have had APLS for several years, picked up after several miscarriages so was o...

tassie

•12 years ago

47 Replies

Challenges in the diagnosis of APS, (link to article, quite interesting read)...

Well, I found it interesting, I'm "worthy of further investigation" for APS despite 3 positive Anti B2 Glycoprotein tests (I always thought the standard was...

Well, I found it interesting, I'm "worthy of further investigation" for APS desp...

Andy_A

•12 years ago

3 Replies

Anticardiolipin AB, IGG blood test results?

I recently mentioned I have been newly diagnosed. My most recent anticardiolipin igg test was at 111 and before that 109. My Dr. said that was a very high...

I recently mentioned I have been newly diagnosed. My most recent anticardiolipi...

Hilariew930

•12 years ago

3 Replies

Still new with this.... emotions are crazy some days

Hi everyone, I posted here a couple months back when I first learned I had this. Everyone was so warm and welcoming and so understanding. It's a breath of...

Hi everyone, I posted here a couple months back when I first learned I had th...

Hilariew930

•12 years ago

11 Replies

Hi everyone, I have hugehs syndrome and I want to go travelling- what do i do about testing?

Im 24 years old and have coem to the stage in my life in which i want to go travelling. I am from the uk and am travelling to the us for three months. the dr...

Im 24 years old and have coem to the stage in my life in which i want to go trav...

Lorinda

•12 years ago

15 Replies

fruitflow???

Anybody hear of ( fruitflow ) have been looking about ways to help to thin the blood without the side effects of stomach problems that asiprin can cause , and...

Anybody hear of ( fruitflow ) have been looking about ways to help to thin the b...

sr56

•12 years ago

12 Replies

Sweating

First of all I know that ladies glow lol we talked about vit D yesterday and a lot of us had the same problem I have horrible sweats that is so bad it drips...

First of all I know that ladies glow lol we talked about vit D yesterday and a l...

taffydaffy

•12 years ago

8 Replies

coping with APS and other illness

Today is a bad day for my have bad pain in my back with is my kidney playing up due to having 2 tubes coming out of my left kidney was born like it but only...

Today is a bad day for my have bad pain in my back with is my kidney playing up ...

christinebonner

•12 years ago

10 Replies

Vitamin D and APS, some interesting reading..

Having just got a copy of the letter St T's has sent my GP after my recent appointment, which states my vitamin D levels are "very low" I decided to have a...

Having just got a copy of the letter St T's has sent my GP after my recent appoi...

Andy_A

•12 years ago

22 Replies

hughes and whole in heart ?......my first blog!

This is my first blog, i'm not a blogger! (so bear with me!!) I stumbled on this site after finding out about Hughes Syndrome and what it is. I still really...

This is my first blog, i'm not a blogger! (so bear with me!!) I stumbled on this...

MagicalHare

•12 years ago

15 Replies

does enyone get skin pain.

sometime my skin hurts just tucing it.. and some times it has a byrning feeling. claire

sometime my skin hurts just tucing it.. and some times it has a byrning feeling....

clairegrinddal

•12 years ago

8 Replies

does any one else get itching skin and rashes, plus little red blood spots on there skin,

does any one else get itching skin and rashes, plus little red blood spots on there skin, last year i had 3 rashes and the doctor was very good and read my...

does any one else get itching skin and rashes, plus little red blood spots on th...

christinebonner

•12 years ago

43 Replies

Privacy

When we set up this group, we made a decision to allow people who found us via our website or Google searches on Hughes Syndrome for example, to be able to...

When we set up this group, we made a decision to allow people who found us via o...

paddyandlin

•12 years ago

1 Reply

DLA

Went to see my disability adviser about my Dla appeal she said if I don't get DLA then nobody should get it and wants to represent me if it goes to tribunal.It...

Went to see my disability adviser about my Dla appeal she said if I don't get DL...

TJSTICKYBLOOD

•12 years ago

7 Replies

Being given the run around with diagnosis and other gripes

Finally at age 46 I am beginning to make sense of the endless health problems I have had since childhood, and in particular teenage years. However from one...

Finally at age 46 I am beginning to make sense of the endless health problems I ...

MaryF

Administrator•12 years ago

7 Replies

APS and nephrotic syndrome

My wife has APS - and has been dealing with Nephrotic syndrome - been in ICU for this over the past two weeks - no consistant sucess on using diaretics, has...

My wife has APS - and has been dealing with Nephrotic syndrome - been in ICU for...

Skyllark

•12 years ago

11 Replies

Hate being ill !!

I seem to catch germs so easily but hate it when I'm ill, it always takes so long to feel better. I'm worried that I have to take time off work but Im a...

I seem to catch germs so easily but hate it when I'm ill, it always takes so lon...

janekins

•12 years ago

5 Replies

joint and musel pain

i have hughes and i cant walk some days i have soo much pain in my joints and musel loss my balance all the time.. drop things.. have bad mygrains i am on...

i have hughes and i cant walk some days i have soo much pain in my joints and mu...

clairegrinddal

•12 years ago

20 Replies

Article from paper

http://www.telegraph.co.uk/health/healthnews/9029809/Electrical-pulses-to-the-brain-could-help-stroke-victims.html Mary F

http://www.telegraph.co.uk/health/healthnews/9029809/Electrical-pulses-to-the-br...

MaryF

Administrator•12 years ago

4 Replies

I have had Hughes for for 50 years, now I have Temporal Artritus, could this have been caused by Hughes?

norris

•12 years ago

7 Replies

Sjogrens-just how dry can your mouth get?

I've long been diagnosed with Hughes and the man himself added mild Sjogrens a few years ago. At that time I was having dry eye problems and I have artificial...

I've long been diagnosed with Hughes and the man himself added mild Sjogrens a f...

tim47

•12 years ago

19 Replies

A Saturday Moan

Hi guys'n'girlz Prrrrrhhhrh I just need to vent ....... Last night, I suddenly developed a fever....... no idea why, my joints killed, my lung was...

Hi guys'n'girlz Prrrrrhhhrh I just need to vent ....... Last night, I sudd...

Lesley_D

•12 years ago

10 Replies

DAUGHTER IN HOSPITAL WITH BACTERIAL INFECTION

Well my daughter has Lupus, ITP and APS but just before xmas 11 she had a negative test, despite the blotchiness of skin, headaches etc and then last Monday...

Well my daughter has Lupus, ITP and APS but just before xmas 11 she had a negati...

daisy11

•12 years ago

10 Replies

UK Common Cold Remedies

On looking at cold remedies in the chemist, I notice that they are not recommended if you are on blood thinning medication or, have vascular problems. Apart...

On looking at cold remedies in the chemist, I notice that they are not recommend...

anje

•12 years ago

5 Replies

Since being diagnosed with APS I have had heart palpitations. 24 hour tape found 3 ectopic heart murmurs. Not serious, but take medication

to assist with palpitations. Now not able to sleep on left side. Anyone else found this problem?

to assist with palpitations. Now not able to sleep on left side. Anyone else f...

MaryH

•12 years ago

8 Replies

Flare Up?

I was DX with APS(positive LA) about 8 months ago after I had a DVT. What do people mean when they say they have "flare-ups"? I am under 30 years old... and...

I was DX with APS(positive LA) about 8 months ago after I had a DVT. What do peo...

blondie26j

•12 years ago

15 Replies

INR Rant part 2

Hi Folks Just a quick update my INR is now....wait for it, don't get to excited....7.9 which I suppiose is better that 10+ To add further insult I have...

Hi Folks Just a quick update my INR is now....wait for it, don't get to exci...

judes

•12 years ago

4 Replies

Attention all bloggers, contributors and readers.....

We are... only two members off 500 now, what a long way we have ALL come in such a short space of time! Mary F xx

We are... only two members off 500 now, what a long way we have ALL come in such...

MaryF

Administrator•12 years ago

21 Replies

We're mentioned in the Spectator today

FYI - Hughes syndrome is mentioned in a book review on Queen Anne in the Spectator today. They've done a sensible explanation for a book review (well, it is...

FYI - Hughes syndrome is mentioned in a book review on Queen Anne in the Spectat...

Hidden

•12 years ago

5 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for January 2012

Does your INR level affect the way you feel?

Challenges in the diagnosis of APS, (link to article, quite interesting read)...

More vitamin D in APS articles...

Anticardiolipin AB, IGG blood test results?

Still new with this.... emotions are crazy some days

Hi everyone, I have hugehs syndrome and I want to go travelling- what do i do about testing?

fruitflow???

Sweating

coping with APS and other illness

Vitamin D and APS, some interesting reading..

hughes and whole in heart ?......my first blog!

does enyone get skin pain.

does any one else get itching skin and rashes, plus little red blood spots on there skin,

Privacy

DLA

Being given the run around with diagnosis and other gripes

APS and nephrotic syndrome

Hate being ill !!

joint and musel pain

Article from paper

I have had Hughes for for 50 years, now I have Temporal Artritus, could this have been caused by Hughes?

Sjogrens-just how dry can your mouth get?

A Saturday Moan

DAUGHTER IN HOSPITAL WITH BACTERIAL INFECTION

UK Common Cold Remedies

Since being diagnosed with APS I have had heart palpitations. 24 hour tape found 3 ectopic heart murmurs. Not serious, but take medication

Flare Up?

INR Rant part 2

Attention all bloggers, contributors and readers.....

We're mentioned in the Spectator today

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