Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for January 2012

does anyone have problems with their heart?

just came out of hospital yesterday having had a suspected heart attack. However, an angiogram showed no damage although I went into spasm. Whilst it was being...

just came out of hospital yesterday having had a suspected heart attack. However...

Stella

•12 years ago

14 Replies

Venus Williams withdraws from Australian Open with Sjogrens

Just heard that Venus has pulled out due to Sjogrens. Add that to the PE that Serena had last year. What's the betting that they both have APS? I wonder if...

Just heard that Venus has pulled out due to Sjogrens. Add that to the PE that Se...

travelnut

•12 years ago

6 Replies

Do you work with APS, Can you work?

Hi all I am currently attempting to be rehabilitated back into my job after 11 months off sick, after a PE and resulting lung problems. My specialist has...

Hi all I am currently attempting to be rehabilitated back into my job after 1...

Lesley_D

•12 years ago

36 Replies

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A skydive to raise awareness

Well, tomorrow I will write a letter to my chest physician, in the absence of any other doctor, to ask him if he considers me well enough to do a skydive. My...

Well, tomorrow I will write a letter to my chest physician, in the absence of an...

Lesley_D

•12 years ago

11 Replies

getting info

I have just come out of hospital again and have been really shocked by wwhat i was told by the consultant on call. I thought i had 1 clot on my left hand side...

I have just come out of hospital again and have been really shocked by wwhat i w...

margaretjo

•12 years ago

4 Replies

Nerve conduction studies

When I last saw my Nerologist, who thank God has said I no longer needed to see him unless I had another epileptic fit, anyway just before leaving his office I...

When I last saw my Nerologist, who thank God has said I no longer needed to see ...

daisyd

•12 years ago

3 Replies

New - Blind and Deaf

My brother was diagnosed with Hughes syndrome 6 months ago. He has lost his hearing and all of his sight in his right eye and very little sight left in his...

My brother was diagnosed with Hughes syndrome 6 months ago. He has lost his hea...

jasis

•12 years ago

4 Replies

same 400mg has anyone tried it?

My daughter works as an entertainer in chichester, certain weekends are dedicated purely for people suffering from fibromyalgia. A kind lady gave my daughter...

My daughter works as an entertainer in chichester, certain weekends are dedicate...

kathyD64

•12 years ago

11 Replies

Are there always cognitive problems with aps?

KBud

•12 years ago

9 Replies

newbie

hi everyone. i have just joined tonight and wanted to introduce myself. im linda and think there is a very good possibility i might have hughes syndrome. i...

hi everyone. i have just joined tonight and wanted to introduce myself. im li...

linda1scot

•12 years ago

15 Replies

Members Stories up to 09 Jan 2012

As we all know reading other people stories can help you identify and help you stop making you feel mad so Please find the latest installments of members...

As we all know reading other people stories can help you identify and help you s...

paddyandlin

•12 years ago

3 Replies

Upcoming episode of 'House' featuring APS/Hughes Syndrome.....

An episode of 'House' featuring APS/Hughes Syndrome is repeated on UK TV next Saturday (14th January) on Sky's Universal channel, at either 1pm or 2pm....

An episode of 'House' featuring APS/Hughes Syndrome is repeated on UK TV next S...

Izzchick

•12 years ago

15 Replies

happy new year

hi all hope u r all well n had gd xmas and new year.................. im feelin alot betta nw thnk god nw my inr in range....

hi all hope u r all well n had gd xmas and new year.................. im feelin ...

rach1081985

•12 years ago

6 Replies

Strange feeling of elastic bands around my legs.

Was diagnosed around 34 years ago, and have been on warfarin since. My irn seems to be uncontrolled. Mostly around 3.5 - 4.6. Highest 7.7 and lowest 1.2....

Was diagnosed around 34 years ago, and have been on warfarin since. My irn seem...

CountryGirl

•12 years ago

3 Replies

Hospital update and Cognitive Deficits in Patients With Antiphospholipid Syndrome

http://archinte.ama-assn.org/cgi/reprint/166/20/2278.pdf Not sure if the above link will work but if not you can copy and paste into your browser. I was at...

http://archinte.ama-assn.org/cgi/reprint/166/20/2278.pdf Not sure if the abov...

TJSTICKYBLOOD

•12 years ago

12 Replies

What to take to St T's?

Well, after a long wait I get to go to St T's next Thursday, its been the hardest wait of my life, has seen me in hospital twice where nothing was done, its...

Well, after a long wait I get to go to St T's next Thursday, its been the hardes...

Andy_A

•12 years ago

10 Replies

At last

I'm so happy we have finally managed to get my twin referred to St Thomas' after she was told it was good news that all her test results were negative at our...

I'm so happy we have finally managed to get my twin referred to St Thomas' after...

huds

•12 years ago

9 Replies

Abscesses

Hi Can you please help. With APS, are we more at sceptical to Abscesses regarding the Anti-Bodies? The reason for asking is that I might have got one...

Hi Can you please help. With APS, are we more at sceptical to Abscesses re...

Stannington-lad

•12 years ago

5 Replies

Most of us

Have managed to get some good care, although the path can be long... but there is a very good petition which needs to grow legs....

Have managed to get some good care, although the path can be long... but there i...

MaryF

Administrator•12 years ago

6 Replies

Charity office move

Hi Everyone Just to let you know that the Hughes Syndrome Foundation charity office has (FINALLY!) moved to its permanent home. Our new address is:...

Hi Everyone Just to let you know that the Hughes Syndrome Foundation charity ...

Hidden

•12 years ago

5 Replies

Prof Hughes' December 2011 blog - last blog!

This is my last blog for some months. Our young charity is growing fast. Thanks to the efforts of Lynne Kirwin and Kate Hindle, and their...

This is my last blog for some months. Our young charity is growing fast. ...

Hidden

•12 years ago

7 Replies

Song!

Here is a song that always seemed to be about me! I posted a poem on here so now here's a song, if you change the name it could also be about you! :) xx...

Here is a song that always seemed to be about me! I posted a poem on here so now...

Suzypawz

•12 years ago

6 Replies

Last chance to run the Brighton Marathon on behalf of the HSF - 15th April 2012

I know that most of us aren't able to walk a mile, let alone run a 26 mile marathon :) but if you know of anyone who would like the opportunity to run the...

I know that most of us aren't able to walk a mile, let alone run a 26 mile marat...

Hidden

•12 years ago

5 Replies

Suffering at the moment!!

Does anybody else get these episodes where everything hurts, and you cant sleep with restless legs and muscle pain, am not too sure if its the raynauds or the...

Does anybody else get these episodes where everything hurts, and you cant sleep ...

emmaj

•12 years ago

7 Replies

a dilemma

I lIve In Surrey and my elderly parents live in Glasgow. My mother has alzheimers and a myriad of other conditions and is in hospital with a broken elbow and...

I lIve In Surrey and my elderly parents live in Glasgow. My mother has alzheime...

panda60

•12 years ago

5 Replies

2012

My sincerest,warmest wishes of good luck and happiness to you all for 2012... May your days be less painfull May your memory be bettered stored May you all...

My sincerest,warmest wishes of good luck and happiness to you all for 2012... M...

Andrewl

•12 years ago

7 Replies

could someone please explain what a tia is and should everyone with aps be tested for irn levels regularly

i cant get in to see the doc for another 2 weeks and am worried about all these new symptoms like when someone is talking to me i go to say something and all...

i cant get in to see the doc for another 2 weeks and am worried about all these ...

AINS

•12 years ago

5 Replies

bleeding in mouth

I have been spitting up blood for a couple of hours..if anything it is getting worse..nothing comes to mind that would have started the bleeding ..my INR must...

I have been spitting up blood for a couple of hours..if anything it is getting w...

penzance66

•12 years ago

5 Replies

Happy New year!!!

Well as you can see its 4am and we've just finished. Left al downstairs kicking the stragglers out. Go home to bed now people!! Anyway just wanted to wish...

Well as you can see its 4am and we've just finished. Left al downstairs kicking ...

jessielou

•12 years ago

14 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for January 2012

does anyone have problems with their heart?

Venus Williams withdraws from Australian Open with Sjogrens

Do you work with APS, Can you work?

A skydive to raise awareness

getting info

Nerve conduction studies

New - Blind and Deaf

same 400mg has anyone tried it?

Are there always cognitive problems with aps?

newbie

Members Stories up to 09 Jan 2012

Upcoming episode of 'House' featuring APS/Hughes Syndrome.....

happy new year

Strange feeling of elastic bands around my legs.

Hospital update and Cognitive Deficits in Patients With Antiphospholipid Syndrome

What to take to St T's?

At last

Abscesses

Most of us

Charity office move

Prof Hughes' December 2011 blog - last blog!

Song!

Last chance to run the Brighton Marathon on behalf of the HSF - 15th April 2012

Suffering at the moment!!

a dilemma

2012

could someone please explain what a tia is and should everyone with aps be tested for irn levels regularly

bleeding in mouth

Happy New year!!!

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