antithyroid antibody

[kathyD64]

Hi when i was first dx with hughes my bloods also said i had antithyroid antibodies. My thyroid gland is said to be borderline but i wandered if it is part of an auto immune pattern?? kathy x

[MaryF Administrator]

Hello and yes it is..... I strongly advice you to join the thyroid forum on health unlocked on this platform, where you can ask very detailed questions. flag up new member status.... there is uproar in the UK as the diagnosis criteria is quite frankly thought by many to be wrong. As a patient with this. I have gone it alone and do it via the natural route, but to do this, you have to know what you are doing and employ the correct practitioner..... or if that is not what you wish to do... you could get a referral to Dr Skinner who works in Birmingham, it is a private thing... but for him you do still need a referral. From one who has this, with bells on, I understand. Mary F

[kathyD64]

Thank you Mary i will. As my case was published in 1990 ive just recently seen this blood result printed and recently have been told my thyroid gland is borderline. On asking my rheumatologist he didnt comment when i asked if it was linked. Interestingly My niece has been dx with hypothyroidism and chronic fatigue. Her surgery did test her for hughes but it was negative despite her suffering years of migraines and joint pains. She has had 2 normal deliveries but had a ? TIA last year, she is 36 and still is so fatigued i am wandering if she has sero negative hughes. She is a police woman but have done desk work now since her children were born but to date can only manage 1.5hrs a day for 4 days despite her thyroid function test is now normal with medication. They said she does not have fibromyalgia but dx cfs.

[MaryF Administrator in reply to kathyD64]

My GP willingly did normal thyroid tests, which as usual I passed with flying colours.... seeing as I am seronegative with hughes and only recently discovered lupus, along with the psoriatic arthropathy and sjogrens I already have.... I can only suppose my mixture of autoimmune disease perhaps makes me fail tests or whatever... however I remained diligent and decided due to the obvious clinical signs I have to get re tested privately with very detailed tests. My test results were appalling.... and I am now being treated successfully. If you read my profile and first blogs you will see that my family is deeply affected by Hughes. Best of luck and keep in touch, you will find the other forum I mentioned more than useful I regularly blog my progress on there so as not to get overwhelmed my conditions etc etc grrrrrrrrrrr etc Mx

[Storky]

As Mary has already correctly stated there is a link between Thyroid Antibodies and Hughes (APS). Prof Hughes told me that the link was between Hughes, Sjogrens, Thyroid Antibodies, Fibromyalgia, Cardiac Syndrome X and Celiac Disease. The symptoms from all of these can cross over so its hard sometimes to know what is down to what. Ive given up trying to work it out TBH!

[kathyD64 in reply to Storky]

Thank you for this i believe fibromyalgia is linked somehow to hughes as it is to concoincidental how many get dx it or sound like they have symptoms... like you say it is so hard to determine what is down to what and then you have to add on the side effects of medications!!