Well my daughter has Lupus, ITP and APS but just before xmas 11 she had a negative test, despite the blotchiness of skin, headaches etc and then last Monday she complained of not feeling too well, but still went to college and then Wednesday she came home to say that she was so hot etc. We rang the oncall ddoc who said to give her paracetomol which we did, but still on Thursday still no better, so she went to the GP in place of me ( I had made an appt weeks ago with the GP so I asked them if my daughter could come instead) My husband took her and he rang me to say that the GP had said straightaway A & E without looking at her, so poor husband spent 4 hours whilst my daughter on a trolley with nowhere to sit just standing and eventually she was put on a ward. They tried unsucessfully to do 2 lumbar punctures and was told that she would get a ct scan the next day before lunch, well - change of plan - cannot do lumbar and still not had ct scan. She is on a number of antibiotics and they are just waiting!!!! They think it is a mild form of Menigitis and because of her low immune system. I have been unable to attend as I am on such high dose of MMF and no spleen and they said I was at high risk.
My daughter had said her friend had been off school for 4 days due to stiff neck.
The times I tell my daughter to wrap up etc, I know she can still get meng without the bother of wrapping up in the cold but as a teenager, she does not listen to us and think we are going on and on. Hopefully she will now understand, the importance of warmth etc etc.
She came home briefly just for half an hour to wash her hair and she has gone back to have her antibiotics, she may be in for two weeks!!!!!
I have had to stay clear of her.
How I thought this year was not going to be Hospital year.
Excuse spellings etc.