does enyone get skin pain.: sometime my... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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does enyone get skin pain.

clairegrinddal profile image
8 Replies

sometime my skin hurts just tucing it.. and some times it has a byrning feeling.

claire

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clairegrinddal profile image
clairegrinddal
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8 Replies
Stannington-lad profile image
Stannington-lad

Hi clairegrinddal - Sorry that you are having pain, only burning sensation I get is where my vains are.

Hope this helps.

viv112 profile image
viv112

Hi

I have a problem with sensitive skin on my legs below my knees, and it is worse on my left leg down the side. I wear below knee compression stockings which make my legs feel more comfortable. My skin feels that burning sensation if I am bare legged and I cant wear trousers next to my bare skin because fabric irritates my skin. I cant wear leggings or skinny jeans even with stockings because they rub my skin. I did have a skin biopsy from my left calf a year or so back and the dermatologist said that the biopsy showed capillaritis which is a form of small cell vasculitis but he told me not to worry about it. I hate it in summer when I cant have bare legs like I used to. I’ve tried different creams but have settled on Dermol and Eumovate. I guess its just something I have to live with –and other people live with worse problems!

clairegrinddal profile image
clairegrinddal in reply to viv112

get the same pain just goind to bed and put the covers over me it hurts...and some days i cant were clites so yes maybe we jus have to kive with it.. have hurd that it could be nerve damage.. becouse off hughes..

paddyandlin profile image
paddyandlin

mine is painful to the touch right foot the say it is to do with the stroke damange and the damge to the nerves by the APS,

i am sorry to say i have as yet not found a cure except grim and bear it when putting shoes and socks on.

paddy

MaryF profile image
MaryFAdministrator

If I have any form of reaction to a virus my skin hurts from head to toe, rather than just itching. Mary F

clairegrinddal profile image
clairegrinddal in reply to MaryF

mine to hate it,,

SueLovett profile image
SueLovett

I get this too. Sometimes everything hurts to touch.

I also get the burning pain which is nerve pain very unpleasant.

clairegrinddal profile image
clairegrinddal

ok thanks to all.. looked it up on the internet and it has something to do with having hughes... my mum gets the same pain....and yes it is very unpleasant...

easant...

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