APS and nephrotic syndrome

[Skyllark]

My wife has APS - and has been dealing with Nephrotic syndrome - been in ICU for this over the past two weeks - no consistant sucess on using diaretics, has been dealing with CAPS(cronic APS) for the past 16 years. Since April 2011 has been dealing with very rare CAPS flairs...

[Storky]

I wish you and your wife the very best of luck. We are all thinking of you. x

[Skyllark in reply to Storky]

thanks - great to have support even from people that do not know you - Here in Canada... finding people that even know what APS is, even some most Doctors do not know have experience with this

[Jane-Martin]

So sorry, you must feel so distressed. Our love and thoughts are with you and your wife. Please keep us informed of her condition and how you managing.

[jessielou]

Hi skylark

So sorry to hear how poorly your wife is. I hope she improves and feels better soon, have had nephritus in the past and really feel for your wife and yourself.

Here if you need a rant, moan or help and support.

Take care gentle hugs love sheena xxxxxx

[Skyllark in reply to jessielou]

what did you take when you had nephritis, like for meds, here they are using diraretics... not using prednezone... cause of the side-affects it can have on people with CAPS...

[jessielou in reply to Skyllark]

Hi skylark

is a long time ago but from what i can remember i had antibiotics, was on a drip to flush fluids through cos was constantly sick, had the aeges (spelling), very little pain relief, no prednisilone, was pregnant at the time. So was difficult to treat.

Hope your wife gets better soon.

Take care gentle hugs love sheena xxxxxx

[Skyllark in reply to jessielou]

are youin the UK?

[jessielou in reply to Skyllark]

Yes hon.

Sorry takes a while to get back to you. We run a pub so long hours and sleep when we can.

Take care gentle hugs love sheena xxxxxxxx

[paddyandlin]

Hi Skylark,

Welcome to the group, I am sorry to haear what is happening to your wife we all on this forum are here to help and i does not matter where in the world your from all patients with APS and there families can support each other in the same way.

paddy

[danaja]

CAPS refers to Catastrophic Anti phospholipid Antibody Syndrome. This is the one we all worry about. We will be sending you all of our good energy.

[Hilariew930]

Thinking of you and your wife. I pray things get better. Please keep us posted.