We are... only two members off 500 now, what a long way we have ALL come in such a short space of time! Mary F xx
Attention all bloggers, contributors ... - Hughes Syndrome A...
Attention all bloggers, contributors and readers.....
Hi Mary
Amazing, how far, only 6 mnths. I have gained so much. Pat on the back to all!! Gently!!!!
Take care gentle hugs sheena xxxxxx
It has been amazing ho this group has been able to take off well done all Party when we reach 500!!!
We just have!!!! MF x
PARTY TIME YEAH!!!!!! WELCOME ALL 500 PEOPLE!!!!!
Wonderful, congratulations for all your wonderful, informative, inspiring intelligent, and warm words, all who helped to make this wonderful facility possible, thank you xxx
Hi
I joined about half an hour ago after finding your site!
Its always good to read about other people who have similar problems and i'm sure this site is going to be great for support!!!
Hello and welcome, lots of support and lots of articles, and very informative, plus lots of people who understand exactly the sort of things you wish to know about! Regards MF x
Hi Jane
welcome n glad you found us. Ask, moan rant whatever you need hon. We here and will help if we can.
Take care gentle hugs sheena xxxxxx
Yeah 500 party is on.
This place is a great source of comfort to me when I feel syndromeful. When my brain goes fuzzy and I can't remember stuff, people tell me I'm just getting old, it happens to everyone. When my body aches they tell me I'm just getting old it happens to everyone! When I feel so tired I can barely move, people tell me to exercise!
This place has helped me feel not mental, like it's not all in my head, like I am only 30!!!
So thanks a lot
Hi, Tannyah.
I have witnessed this type of thing first hand and could not believe the types of responses that medical people have given to my adopted daughter. She has been put into a "psych"ward, been given asprin and sent home, and she has been told that ït's all in your head!".
I firmly believe that the best thing I can do, is be there to pick her up if she falls, be there to listen when she can talk, or just sit with her when she needs us,
Don't believe that you're alone in this because you definately are not.
We wish you well.
WayneL
This place is brilliant support knowing other people can relate exactly to how i feel after years of self doubt.
Ditto to ALL of the above!! Congratulations and a BIG Thank you
Well done I am the only person in 10,000 patients @ my surgery and I have always had to fend for myself but thank God for this site it keeps me sane you all deserve medals for all your hard work you do Thank You all for looking after us x
Congratulations and well done.
It's nice to have somewhere to vent off and also find out very useful and pragmatic information from those who have experienced it!
When I was diagnosed 15 years ago, the online APLS forum saved my life. you can bet i didn't have a doctor with a clue at the time, after a DVT and 3 PEs.
Now i have a wonderful and caring team and i have been very fortunate to be in good health 99% of the time.
Thank you all for sharing and caring.