I have horrible body pain and I am 30yrs old with the memory of a 90yr old. This is very scary as I am the mom of 3 little boys. My eldest son had intro uterine growth restriction and now he has severe disabilities. I have put all of my focus into his care and I have to admit I have neglected my own care! I have known for 6yrs that I have Hughes but I have ignored my symptoms. Now my issues are becoming unbearable and I have an appt and I am going to do what I need to do for myself! I have a couple questions though so if anyone can answer them I really appreciate that. First my whole body hurts will blood thinning therapy get rid of my pain and fatigue? If not completely then what kind of pain control regimens are used? Second I live in America and I know Hughes is on the list of excepted disease to get disability but do they give you a hard time? I know this day and age Social Security likes to give people the run around sometimes even for years!