I've been going to St Thomas' for 8 or 9 yrs now and this is the first time I have had cancelled appointments. Spoke to consultant's secretary and she is going to ask whether she is happy for me to have two years in between appointments and will call me back.
My dilemma is that I used my insurance to see a local rheumatologist who diagnosed my fibromyalgia and he is very helpful so am going to discuss with my GP whether to transfer to his NHS clinic.
I have got my diagnosis and have been put on warfarin and provided my inr is ok Hughes is under control. I have also been told I have symptoms of lupus and it is in my notes that I can have steroid shots if I need them. So not sure whether St T's can actually do much more for me at the moment. Anyhow will see what my GP thinks.