Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for September 2011

Feelings in words "written post stroke"

Shadow The question I find myself asking is "Do I like the new me?" When I look in the mirror I see a different person A Shadow of my former self. The...

Shadow The question I find myself asking is "Do I like the new me?" When I ...

ClareSteggles

•13 years ago

5 Replies

Energy levels

Hi, I'm new to this site, having lupus,Hughes s and sjogrens and feeling worn out most of the time are there any vitimins / health foods that can boost the old...

Hi, I'm new to this site, having lupus,Hughes s and sjogrens and feeling worn ou...

Gary-1960

•13 years ago

6 Replies

Precautions around the home/work

Hi all, Besides the obvious, such as knives facing downwards in the dishwasher! I wondered if anyone has any tips for precautions or practices for safe...

Hi all, Besides the obvious, such as knives facing downwards in the dishwashe...

StuartD

•13 years ago

4 Replies

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What medicines are safe with Warfarin?

Hi all, I've read dozens of websites and am now on my second book about Warfarin therapy and so am fully aware of what you shouldn't eat or drink when on...

Hi all, I've read dozens of websites and am now on my second book about Warfa...

StuartD

•13 years ago

4 Replies

How old were you when diagnosed with APS and what where your first symptoms?

I think this is an interesting question and wish to see if any one had similar symptoms. I was 23 and it all started with a two week migraine, losing weight...

I think this is an interesting question and wish to see if any one had similar s...

beckyb

•13 years ago

28 Replies

New meds and so dizzy!!!!!!

Hi all I have been taking Lyrica for a couple of weeks, were awful side effects at first, but seem to have settled down. Not doing it for all the pain though...

Hi all I have been taking Lyrica for a couple of weeks, were awful side effects...

jessielou

•13 years ago

8 Replies

What I do that keeps me going.

One of the things I took on when I got Hughes as I can't work now , as 'I'm un-reliable'! is I have 'a small animal shelter' in my back garden!! It is...

One of the things I took on when I got Hughes as I can't work now , as 'I'm un-r...

Suzypawz

•13 years ago

11 Replies

Men and APS

Have many of you seen or met men who have APS? Just intrested to know as info i was reading saying that APS is prodominatly a Womans illness? Just a thought

Have many of you seen or met men who have APS? Just intrested to know as info i ...

paddyandlin

•13 years ago

7 Replies

Exercise.

I find that doing exercise helps me mentally as well as physically. When I first got diagnosed with APS 10 years ago I was in so much pain I could hardly...

I find that doing exercise helps me mentally as well as physically. When I fi...

Suzypawz

•13 years ago

6 Replies

Appointments.

Hi all You may need to make yourself a coffee for this one! 1) Yesterday I had two appointments one with the occupational health Doctor, Who told me that...

Hi all You may need to make yourself a coffee for this one! 1) Yesterday I h...

daisyd

•13 years ago

2 Replies

Symptoms of Hughes

Hi, I had multiple PEs two years ago, followed by additional PE and then DVT last year - now on life long warfarin. Do other people feel absolutely...

Hi, I had multiple PEs two years ago, followed by additional PE and then DVT las...

Karen_Probyn

•13 years ago

5 Replies

I'm new!!

Hi, I am new to this site, to be honest found it while doing a spot of research so decided to join and give it a whirl, have been reading your questions etc...

Hi, I am new to this site, to be honest found it while doing a spot of research ...

SammyJ

•13 years ago

33 Replies

Symptoms olympics!!

Here is a post I put on the 'Hughes (APS) support posts & soooo many people put their answers on it! which ended up looking like a chinese menu!! It was...

Here is a post I put on the 'Hughes (APS) support posts & soooo many people put ...

Suzypawz

•13 years ago

32 Replies

What a lovely evening!!! Staffs meet up!!!

Hi all, Met up with Suzy for coffee and chat, really nice being with a fellow Hughie, comparing notes, sharing woes and giggles. Muddling words and...

Hi all, Met up with Suzy for coffee and chat, really nice being with a fello...

jessielou

•13 years ago

2 Replies

Has anyone heard off, or been diagnosed with NICO "neuralgia-inducing cavitational osteonecrosis." ?

I have APS ACL levels 87 currently was discharged from hospital last tuesday having had investigations for pain behind and around my left eye. Home still off...

I have APS ACL levels 87 currently was discharged from hospital last tuesday hav...

kathyD64

•13 years ago

4 Replies

atmospheric pressure

Hi I have had a dreadful day today,. Headache, memory problems not just due to the headache. I am wondering if it has anything to do with the atmospheric...

Hi I have had a dreadful day today,. Headache, memory problems not just due to t...

daisyd

•13 years ago

7 Replies

APS and menopause. Do either effect each other.

One for the ladies this question I think. I am in peri menopause (with all its horrible symptoms) at present but I believe APS if affecting it or vice versa....

One for the ladies this question I think. I am in peri menopause (with all its h...

Jade

•13 years ago

3 Replies

My attempt at a poem!!

Ok Paddy! Here is a poem I wrote last night by looking at others for inspiration & experiences of my own! Hope you all like it : ) PLEASE DON'T...

Ok Paddy! Here is a poem I wrote last night by looking at others for inspira...

Suzypawz

•13 years ago

10 Replies

Is Phospholid Syndrome same as APS or is it different?

I have been diagnosed with Lupus Anticoagulant and the letter states that this is in keeping with the diagnosis of Phospholid Syndrome. Is Phospholid...

I have been diagnosed with Lupus Anticoagulant and the letter states that this i...

Stannington-lad

•13 years ago

9 Replies

Hello everyone. I wonder whether anyone knows whether we are supposed to drink alcohol?!

I don't know if i am supposed to drink (even moderately!!) with APS. I am only on asprin at the moment but want to keep as well as possible. Thanks so much...

I don't know if i am supposed to drink (even moderately!!) with APS. I am only o...

KathrynRowley

•13 years ago

9 Replies

Working with Hughes and Lupus

I have Hughes, Lupus (SLE) and Sjogrens and have been diagnosed with these things in the past year. I have always worked full time but really struggled over...

I have Hughes, Lupus (SLE) and Sjogrens and have been diagnosed with these thing...

MaryHolder

•13 years ago

7 Replies

APS with Flu Vaccination

StuartD

•13 years ago

6 Replies

Is it still possible to get Life insurance with critcal illness cover even if you have APS but have had a stroke?

I ve just reviewed my life insurance from 2006 and found i am not covered HELP?

ClareSteggles

•13 years ago

10 Replies

Blogs on Blogs

I was reading some of the responses today on questions an i noticed that a few memebers have there own Blogs! I am the type of person who believes that...

I was reading some of the responses today on questions an i noticed that a few m...

paddyandlin

•13 years ago

4 Replies

APS only when pregnant???

I was diagnosed with APS in 2009 after losing 5 babies. When i discovered I was pregnant for the 6 time I was put on 150mg of Aspirin and 20mg of Clexaine...

I was diagnosed with APS in 2009 after losing 5 babies. When i discovered I was ...

Traceyhems

•13 years ago

11 Replies

Are Sjogrens Symptoms intermittent?

Just curious as the docs now want to test me for this as I sometimes have very dry red itchy eyes and dry mouth. Lately its been real bad and having to use...

Just curious as the docs now want to test me for this as I sometimes have very d...

Hidden

•13 years ago

5 Replies

Can our children be tested for Hughes Syndrome

I have sero negative hughes which was diagnosed by Dr K a few years back. My 20 month daughter had a awful rash (which looked like hives) last week which...

I have sero negative hughes which was diagnosed by Dr K a few years back. My 20...

huds

•13 years ago

11 Replies

Chronic Pain

Hi All, Been searching and i know some of you been talking about pain managment etc and i rembered this article was some help so some people on the APLSUK...

Hi All, Been searching and i know some of you been talking about pain managm...

paddyandlin

•13 years ago

3 Replies

Poems

I found these poems which other peoiple found useful on the APLSUK forum and thought you would like to read them. When you come face to face with me My...

I found these poems which other peoiple found useful on the APLSUK forum and tho...

paddyandlin

•13 years ago

4 Replies

Brain Fog

Hi All, I have been talking to other people on other Forums and a lot of people have issues with Brain Fog and Memory issues and we have been talking about...

Hi All, I have been talking to other people on other Forums and a lot of peop...

paddyandlin

•13 years ago

14 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for September 2011

Feelings in words "written post stroke"

Energy levels

Precautions around the home/work

What medicines are safe with Warfarin?

How old were you when diagnosed with APS and what where your first symptoms?

New meds and so dizzy!!!!!!

What I do that keeps me going.

Men and APS

Exercise.

Appointments.

Symptoms of Hughes

I'm new!!

Symptoms olympics!!

What a lovely evening!!! Staffs meet up!!!

Has anyone heard off, or been diagnosed with NICO "neuralgia-inducing cavitational osteonecrosis." ?

atmospheric pressure

APS and menopause. Do either effect each other.

My attempt at a poem!!

Is Phospholid Syndrome same as APS or is it different?

Hello everyone. I wonder whether anyone knows whether we are supposed to drink alcohol?!

Working with Hughes and Lupus

APS with Flu Vaccination

Is it still possible to get Life insurance with critcal illness cover even if you have APS but have had a stroke?

Blogs on Blogs

APS only when pregnant???

Are Sjogrens Symptoms intermittent?

Can our children be tested for Hughes Syndrome

Chronic Pain

Poems

Brain Fog

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Out of Hours GP provision - how has your's served you in an emergency?

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