Men and APS

[paddyandlin]

Have many of you seen or met men who have APS? Just intrested to know as info i was reading saying that APS is prodominatly a Womans illness?

Just a thought

[MaryF Administrator]

Well my father who lived to a ripe old age... had a history of blood clots and also Thrombocytopenia, his own father had blood clots also... looks like this is where it passed down the family line, my brother seems unaffected, but my sister's both have had clots in legs and lungs, and also both my children terrible migraine.... my youngest son a migraine very severe, which lasted 15 months and 4 days! and my daughter now has one every day. We are waiting to be referred, however the PCT reluctant due to ignorance and politics...however one way or another we will get there in the end.

M

[JOHNN]

I am man who found out I have APS when I had a stroke 5 years ago when I was 44.

[Storky]

I think they think it is predominantly to do with women because of the link with miscarriages, however my father had haemolytic anaemia, migraines and TIA's which is now thought to be Hughes (being tested because of me). Prof Hughes says there is a genetic link so it would seem to me that although women seem to be at greater risk because of the pregnancy issues, men can be just as likely be susceptible to it.

[MrBigDog]

I'm a man and was diagnosed in early 2009. I suffered multiple pulmonary embolism in the fall of 2008, and have been on warfarin every since. I'm still trying to learn as much about APS as I can and have been experiencing similar effects as other sufferers...Very frustrating!

[jessielou]

Hi all

I feel for you, cos from what I've read and it being so often not understood by some gp's must be so difficult to get help support and information.

About 20 years ago my dad was told he had sticky blood, that was it no follow up, nothing, recently he had a mini stroke and has had a few Tia's, much nagging and cajoling to him and his Gp, and in view of my diagnosis, the drs are doing tests. At least now he on aspirin, personally think he needs more but better than just waiting for the next stroke.

Makes me cross cos he needn't have gone through this and had he been dx and treated, maybe i would have too, perhaps then he wouldn't feel so low cos his brain and body won't do what he wants. Also maybe I wouldn't have had so many miscarriages, blood clots and my brain and body would perhaps work better.

Who knows. Anyway of my soapbox. I'm lucky my dad still here!!!! Grouchy and all!!!

Hope all feeling ok today!

Take care gentle hugs Jessielou x x x x x

[PterVee]

Hello:

I am male , 48 yrs old and physically active (cyclung, running, etc). I was diagnosed in Nov 2010 after Kidney infarction and bilateral pulmonary embolism.

ptervee

[paddyandlin]

Thanks for all thge replys so far its nice to know that man or woman this illness can cause trouble for us and through the blood line in a morbid kind of way.

thanks