My attempt at a poem!!: Ok Paddy... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,354 members10,542 posts

My attempt at a poem!!

Suzypawz profile image
10 Replies

Ok Paddy!

Here is a poem I wrote last night by looking at others for inspiration & experiences of my own!

Hope you all like it : )

PLEASE DON'T JUDGE ME.

I would like you to understand

Without too much sympathy

Please just be there if needed

Just try to listen to me.

I get so tired & fatigued

My body doesn’t feel like my own

My body aches & hurts

I try not to complain & moan.

I find it hard to concentrate

My words get muddled & slurred

I’ll get what we call ‘brain fog’

Often I can’t find the right words.

I may get bad headaches

My hands may tremor

I’ll often go of balance & sway

My right side a different colour.

My body doesn’t always respond

My memory Isn’t too good

This causes embarrassment

This disorder nickname is ‘Sticky blood.’

Please don’t judge me

As one day I wont need a stick

But then when I do…..you’ll ask….

‘What’s up? you don’t look sick!’

Written by
Suzypawz profile image
Suzypawz
To view profiles and participate in discussions please or .
10 Replies
paddyandlin profile image
paddyandlin

Suzy that is brilliant well done, it hits the nail on the head well done!!!!

Thank you for doing this your a star

Suzypawz profile image
Suzypawz in reply to paddyandlin

Thank you, I'm blushing now!! : )

Andrewl profile image
Andrewl

Suzy, that is brilliant..........couldn't put it better.

Suzypawz profile image
Suzypawz in reply to Andrewl

Fanx........wasn't sure if I could do it!! : )

jessielou profile image
jessielou

Hi Sue

Is spot on hon, well done.

Couldn`t put it better, if I tried.

Take care, gentle hugs, Sheena xx :-) :-) :-)

Suzypawz profile image
Suzypawz in reply to jessielou

Cheers hun, I'm a poet & didn't know it!!! ;)

Enjoyed meetin up tonight again by the way :) keep well & happy :) xx

Gadgets profile image
Gadgets

Aye very good!

Suzypawz profile image
Suzypawz in reply to Gadgets

Thanks Garry!! :)

TJSTICKYBLOOD profile image
TJSTICKYBLOOD

Exactly exactly how I feel 98% of the time

Suzypawz profile image
Suzypawz in reply to TJSTICKYBLOOD

I thought it may apply to us all, take care x

You may also like...

This is my poem, in answer to the APS one. It is about TIA's (mini strokes)

It's happening again I'm getting the pain right over the top of my head My eyes just won't focus

A poem I wrote early after diagnosis

see red, I know it`s hard to understand, But please reach out and hold my hand. The name of...

Fed Up with my primary

something is wrong, and u know ur own body, Fight til the bitter end till u get what you wand and...

Rooting for my brother - please join me

person makes it additionally challenging. He may have to get on urgent dialysis with permcath once...

Apologies for my absence :(

more snake like floaters. Which is good in one way. I do read all the posts ... It may take me a...