I have sero negative hughes which was diagnosed by Dr K a few years back. My 20 month daughter had a awful rash (which looked like hives) last week which turned to bruising. They did blood tests at my local hosp and said they were ok but could not explain the bruising. I'm not a medical person at all but bruising to me means bleeding. They really could not understand why I got upset and said it was a virus and that she was perfectly fine (I'm sure they have me down as an overanxious mother) but it took me many years and a lot of heartbreak to get my diagnosis which is barely recognised anywhere outside of the specialist units (even using all 3 names aps, hughes and sticky blood had some of the dr's saying they didn't know what I was talking about). I'm now wondering if she could have a seronegative hughes or similar.
Anyone had similar or know where I can get a second opinion from I have photos of the rash and bruising.