atmospheric pressure: Hi I have had a... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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atmospheric pressure

daisyd profile image
7 Replies

Hi I have had a dreadful day today,. Headache, memory problems not just due to the headache.

I am wondering if it has anything to do with the atmospheric pressure really warm here yesterday,today cold and raining

I noticed when I started havind dizzy spells years ago that if I pinched my nose and made my ears pop if I did it soon enough it stopped the dizziness.

I am 100 % certain that after being on an aeroplane it made my memory worse, It hasn't improved with time.

Just wandering if anyone else has noticed this

Karen xx

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daisyd profile image
daisyd
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7 Replies
jessielou profile image
jessielou

Hi Karen,

Maybe something in the atmospherics affecting our INR`s possibly making them go down, I find all symptoms worse when INR too low. Just met up with Suzypawz and both feeling very foggy, memory, speech etc. I wonder how many others have had the same sort of day.

Have you talked to drs about memory since flying? Might be idea to check it out.

Take care, gentle hugs, love Jessielou xxx sheena xxx :-) :-)

london-lass profile image
london-lass

Hi

I am another suffere who is convinced that atmospheric pressure affects me, and my inr. No scientific reason, just observation. But physiologically possible as altitude affects the blood.

Keep smiling!

paddyandlin profile image
paddyandlin

I have found that hot and cold weather effects my condition it is something to think about

daisyd profile image
daisyd

Hi I saw the Rheumatologist yesterday and mentioned the Atmospheric pressure effect, that I thought I had problems with. as far as I remember he said it was an interesting theory.

Pehaps we could have a poll about it. I am going to take more notice about the atmospheric weather from now on. If others do this as well it might tell us something..I will aslo mention it to Professor H when I see her.

Love Karen xx

teresahunter profile image
teresahunter

slightly different view of pressure afecting thigs. iusually feel very foggy headed. 2 weeks ago went to France via the tunnel and about half an hour in france after comimg out of the tunnel my fogginess lifted. it was very bizarre ,a lovely feelin to be free of it,I had forgotten what it was like.I had 2 weeks hloiday in the sunshine felt so much better whether it was the company, warm weather, change of dietor the wine. The tunnel made no difference coming home, but I was feelinng so much better anyway! now home fogy head and tiredness again,ah well, such is life!Teresa

Mirfelt1978 profile image
Mirfelt1978

👋🏼👋🏼🙏🏼🙌🏼 How are you? Let me start by stating I’m praying for you within continuance and I can relate I’m within Florida facing Hurricane Ian and I’m dealing with brain fog/dizziness .. This may sound weird but I fell blood clots move…light headed…dizziness…palpitations…weak etc during any storm I must say Barometric pressure effects us APS patients directly I can attest and relate to everything you mentioned

Lure2 profile image
Lure2 in reply to Mirfelt1978

Hi Mirfelt 1978

I am convinced that the pressure in the air makes us feel worse with our APS.

I read your story very quickly and I wonder if you have a Specialist now for your APS. You need to have that to give you the best anticoagulation for your symptoms. Are you triple positive and do you use Warfarin? You see, I live in Sweden and Warfarin has been my lifesaver. Before Warfarin I had a lot of neurological symptoms and microclots etc. I need an INR of 4.0 to feel good.

I am triplepositive with constantly high titres and no other autoimmun illnesses as we know of and have diagnosed.

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