Posts - PSP Association | HealthUnlocked

PSP Association

9,388 members • 11,418 posts

All posts for January 2019

For sonikaKharb

For sonikaKharb,this is the only way I know how to post for you.

Hidden

•5 years ago

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PSP / Alzheimer's disease / neurological diseases

Today, when I look in my file for the medicine TIDEGLUSIB, for treatment of a tooth, after all it is also for treating other diseases. Tideglusib is a drug...

Today, when I look in my file for the medicine TIDEGLUSIB, for treatment of a to...

Almor957

•5 years ago

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Horrified

Hubbies been in hosp for nearly 7 weeks now due to a fall that broke his hip and other issues he is on the mend though.He was on a lot of meds in there which...

Hubbies been in hosp for nearly 7 weeks now due to a fall that broke his hip and...

demlac

•5 years ago

10 Replies

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CBS OIL

Hi I was diagnosed with Corticobasal Degeneration last year and have to admit I am struggling. I have read quite a bit about cannabis oil helping, especially...

Hi I was diagnosed with Corticobasal Degeneration last year and have to admit I ...

Yve2018

•5 years ago

1 Reply

Resting in peace.

My darling John passed away ai 7.50 on Monday 7 th January 2019. Although it is a sad release I will miss him forever. This site has been so helpful in his 9...

My darling John passed away ai 7.50 on Monday 7 th January 2019. Although it is...

Kathleen52

•5 years ago

24 Replies

Set up in home.....

Hi , Can someone please tell me with photos that what setup we can do in toilet for PSP patient . So that no need to hold the patient and they will not fall....

Hi , Can someone please tell me with photos that what setup we can do in toilet ...

sonikaKharb

•5 years ago

11 Replies

Excessive saliva

Hello all and Thankyou for all the wonderful posts full of advice for caring with adults with psp. I would like your ideas on how to help my father in law who...

Hello all and Thankyou for all the wonderful posts full of advice for caring wit...

Yorksgirl

•5 years ago

11 Replies

Any advice at this stage please.

John is now at the stage where he can't support any part of his body, I am struggling with transferring him from chair to wheelchair, but, my worse problem is...

John is now at the stage where he can't support any part of his body, I am strug...

Servena03

•5 years ago

21 Replies

Hot and cold follow-ups

Thank you all so much - it's good to know that it's not something I'm doing 'wrong' but related to this horrendous illness. I think it's all getting to my...

Thank you all so much - it's good to know that it's not something I'm doing 'wro...

Ruth1921

•5 years ago

4 Replies

What should I be getting from the grieving experience?

I was just replying to someone's kind words when I realized there must be a point to feeling so much pain. There must be something I should be learning from...

I was just replying to someone's kind words when I realized there must be a poin...

greelycat

•5 years ago

10 Replies

This is for greelycat and anyone else who has recently lost a loved one

Dear Greelycat and others I went out yesterday morning and did my local parkrun in memory of Greelycats husband and any other recently departing souls,...

Dear Greelycat and others I went out yesterday morning and did my local parkrun...

Hiking13

•5 years ago

15 Replies

Missing you

I feel bad for even saying this. And it is so not me--I take after my parents where you buckle up and do what it takes. But I miss him so much. And I really...

I feel bad for even saying this. And it is so not me--I take after my parents w...

greelycat

•5 years ago

22 Replies

My brother John

My Dear Brother has passed away at age 68. Bless his Sweet Soul that he is now free from this Horrendous disease!! Our family is of course saddened by this...

My Dear Brother has passed away at age 68. Bless his Sweet Soul that he is now f...

sarahb01

•5 years ago

11 Replies

You are appreciated

Thought all you wonderful, selfless caregivers would appreciate this poem. To My Caregiver I am sorry if I took my anger and poured it out on you its...

Thought all you wonderful, selfless caregivers would appreciate this poem. To...

daddyt

•5 years ago

16 Replies

Holiday causing changes?

Hi, I haven’t posted in awhile but I wondered if anyone else who has loved one with CBD has experienced this? Over Christmas I kept my 19 month old grandson...

Hi, I haven’t posted in awhile but I wondered if anyone else who has loved one w...

Patmimi

•5 years ago

14 Replies

Feeling sad

I thought the last 4 years, watching the steady decline, not knowing what was wrong with dad, getting the PSP diagnosis, was hard. These last 4weeks have been...

I thought the last 4 years, watching the steady decline, not knowing what was wr...

tlovins

•5 years ago

10 Replies

Problematic people

Hi everyone Happy New Year. I have the mother in law from hell and I hope somebody can help me in dealing with this. It's the last thing I need at the moment....

Hi everyone Happy New Year. I have the mother in law from hell and I hope someb...

Baileyboo

•5 years ago

27 Replies

Hot or cold?

I'm wondering if something that's happening recently to my husband (with PSP) is common. For a couple of weeks now, even though we keep the house temperature...

I'm wondering if something that's happening recently to my husband (with PSP) i...

Ruth1921

•5 years ago

6 Replies

My first night w/o you

Well, sweetheart, we made it through our first night apart. I finally finished answering phone calls from all the people who didn't phone when you were...

Well, sweetheart, we made it through our first night apart. I finally finished...

greelycat

•5 years ago

9 Replies

Feels like vibrating as if i were a cell phone.

Last two days while in bed have felt like my body was vibrating like a cell phone. Doesnt last long and is not painful. First time it was just my head but...

Last two days while in bed have felt like my body was vibrating like a cell phon...

FaithlyHopeful

•5 years ago

5 Replies

My sweetheart has left

My darling hubby of 36 years passed away this morning at 63. I am trying not to do the "should have" and "if only" bit. At least his suffering is over.

My darling hubby of 36 years passed away this morning at 63. I am trying not to...

greelycat

•5 years ago

41 Replies

Hiccups

Has anyone else noticed hiccups in their PSP loved one? I have not been able to find anything online relating hiccups to PSP or general end of life. Dad makes...

Has anyone else noticed hiccups in their PSP loved one? I have not been able to ...

tlovins

•5 years ago

5 Replies

PSP Awareness

2019 – The Year for a Cure 2018 has passed… another year for the history books. It was the year of the left, the year of the right and everything in...

2019 – The Year for a Cure 2018 has passed… another year for the history book...

daddyt

•5 years ago

9 Replies

Hello Jill

Hi Jill, I see you liked my response to Granni B's post. It's wonderful to know that you're still following dear, many of us are always happy to a response...

Hi Jill, I see you liked my response to Granni B's post. It's wonderful to know ...

daddyt

•5 years ago

8 Replies

Back again - but for how long?

Had a huge surprise today when going to see my mother (84 and diagnosed with CBD 8 years ago). When I visited a week ago she was totally immobile, unresponsive...

Had a huge surprise today when going to see my mother (84 and diagnosed with CBD...

Hidden

•5 years ago

9 Replies

what exactly is CBD?

can you please explain what exactly is CBD? is it related to PSP? thank you very much!

can you please explain what exactly is CBD? is it related to PSP? thank you ve...

Aryanti

•5 years ago

9 Replies

Need giudance and right medications for psp

Hi everyone i am new to blogging and to this group. Life has changed a lot since 3 years as my father had been diagnosed with psp at very early age of 57 after...

Hi everyone i am new to blogging and to this group. Life has changed a lot since...

Samyak25

•5 years ago

14 Replies

Happy New Year 2019

Such a blessing to have dad up to the table with us for New Years dinner. He was so happy

Such a blessing to have dad up to the table with us for New Years dinner. He wa...

JodiP

•5 years ago

12 Replies

Curiouser and Curiouser...

It occurs to me that we don't actually know what helps, sometimes, because we don't know what we are keeping at bay with all these crazy ideas. I know I want...

It occurs to me that we don't actually know what helps, sometimes, because we do...

StayAtHomeDaughter

•5 years ago

9 Replies

Financial Help

My wife is in receipt of higher level of DLA, due to a serious car accident 20 years ago. Sadly now, diagnosed with CBD. Can someone help me, where & how to...

My wife is in receipt of higher level of DLA, due to a serious car accident 20 y...

Amth_1948

•5 years ago

12 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for January 2019

For sonikaKharb

PSP / Alzheimer's disease / neurological diseases

Horrified

CBS OIL

Resting in peace.

Set up in home.....

Excessive saliva

Any advice at this stage please.

Hot and cold follow-ups

What should I be getting from the grieving experience?

This is for greelycat and anyone else who has recently lost a loved one

Missing you

My brother John

You are appreciated

Holiday causing changes?

Feeling sad

Problematic people

Hot or cold?

My first night w/o you

Feels like vibrating as if i were a cell phone.

My sweetheart has left

Hiccups

PSP Awareness

Hello Jill

Back again - but for how long?

what exactly is CBD?

Need giudance and right medications for psp

Happy New Year 2019

Curiouser and Curiouser...

Financial Help

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive