Had a huge surprise today when going to see my mother (84 and diagnosed with CBD 8 years ago). When I visited a week ago she was totally immobile, unresponsive and unable to speak. This has been her world for at least two years - getting worse and worse in fits and starts despite a very brief respite for a few days a year or so ago, after which she relapsed back to how she was before. When we got there this morning my dad, who cares for her said that she had shown big improvements across the last three days and she greeted me with a smile, some unintelligible speech and an alert face. Such a contrast!! Her previously rigid arms were moving about in a fluid way and later in the day she managed to answer simple questions, said she was feeling “tired and disorientated” and, when asked whether she wanted me to read to her or to let her have her afternoon rest said “I am tired and wouldn’t want to waste your time”. Absolutely incredible!!! I am so hoping that this is more than a brief respite as how she was today means that she can, at least have some human interaction and express her wishes, unlike before. Please if you have a similar tale to tell, do reply to this as I am totally baffled and don’t know what to expect. Thanks so much in advance, and all my best wishes to you for 2019. Mary xx
Back again - but for how long? : Had a huge... - PSP Association
Well that is certainly unusual but I have heard of this before through posts on an American website. It is quite an old website. My husband has CBD and is currently in hospital following a fifth episode of aspiration pneumonia. He is in the same way as your mother but his condition varies from day to day. Sometimes he is responsive and sometimes not. He hasn’t spoken for a year but he communicates with his eyes. It is quite a challenge. I wish you well with your mum. This is such a horrible and challenging illness it must be lovely to have her back however briefly. Do you think this is related to changes in medication?
Wow i have to follow your post. How wonderful and however long it lasts it must be amazing to see part of your Mum back. The only thing i have ever had near is in my dreams 😪 i have had a repeated dream where my Mum in her 6th year with PSP is standing and talking smiling like she use to be. Even though in my dream you can still see this dreadful disease is there but to have one day with our love ones back like you are experiencing would be a dream come true.